2 weeks down!
19 June 2025
We’ve been home for two weeks tomorrow! It’s all a bit of a blur, and adjusting to life with a medically complex child has been tough. We’re slowly relying less on alarms and getting into a more settled routine.
The hardest part has been the dependency — Amelia needs help with almost everything due to her limited mobility. Even simple daily tasks require assistance, and I know it’s frustrating for her not being able to do things on her own.
Our days revolve around pumps and medications, but in the short windows where she’s disconnected, we’ve managed small outings that have been so good for her — from her brother’s school production to a hair appointment and even a quick visit to Northern Health School for a science fix. These little moments of normal are what we missed most in hospital. The pain still kicks in fast, but for a while, she’s distracted.
Being home has been the best thing for her mental health.
We continue to be absolutely blown away by people’s kindness. From donations to our Givealittle, to auction nights, motocross events, movie screenings, fruit stalls, and school fundraisers — it’s more than we could have ever imagined.
To everyone who has supported us in any way: thank you. We are so grateful. xxxx
