Helping Adam, Katie and Niam after a burglary.
Whangarei, Northland
While out enjoying a family outing, Adam, Katie and Niam were burgled. Stolen items: cameras, lenses, a chainsaw, a television, laptop, tablets, and power tools. A lounge suite and a clothes dresser were ruined. Katie battles a rare blood cancer (The Castleman’s’ Variety of POEMS Syndrome). This has damaged many of her nerves resulting in polyneuropathy. She needs foot braces (AFO’s) and crutches or a walker to be mobile. Previously, Katie had to undergo a spinal fusion of her neck due to a tumour then she had to undergo radiation on the tumour where the fusion occurred, as well as other tumours down her spine. Adam had to quit working to look after them both. With finances affected and having to undertake a No Asset Procedure, there was more pressure on finances. This decreased the ability to apply for assistance. Now this family is on the supported living payment with Adam undertaking university studies. To go on a much-needed family outing involves more organisation and effort due to Katie’s health compared to most young families. Then, to return home to find necessary and valuable items taken and rendered useless is heart-breaking. Family and friends are supporting but more is required. Insurance is unaffordable, and understanding is appreciated. Please give to this very worthy cause.
Please find Kate & Adams previous Givealittle page here https://givealittle.co.nz/cause/castlemans-variety-of-poems-syndrome.
Adam, Katie and Niam are our friends
Replacing necessary, damaged and stolen items
Radiation and Stem Cell Transplant 28 March 2023
Kia Ora all,
As previously, thanks so much for all the kind generosity during what seems our continuous never ending struggle.
An update on the Radiation and Stem Cell Transplant: Katie is due to begin her 1 week of intensive radiation on the 20th of April. This will be followed 1-2 weeks after with the Stem Cell Transplant.
Then begins the waiting and lobbying to try and get funding for the monoclonal antibody treatment Daratumumab.....because that's the last and best option remaining. It is funded in Australia, but we're unsure of how/if we are eligible to emigrate over there permanently and then get the the treatment there (If anyone knows that sort of immigration stuff then please get in touch).
Nga mihi,
Adam, Katie, and Niam
Thank you Guest Donor for your donation of support for Adam, Katie and Niam 🧡
Thank you Joshua for your donation of support for Adam, Katie and Niam 🧡
Thank you Kathy for your donation of support for Adam, Katie and Niam 🧡
Thank you Liz for your donation of support for Adam, Katie and Niam 🧡
Thank you Guest Donor for your donation of support for Adam, Katie and Niam 🧡
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