Baby Coen Wylie

Coen was born on February 19, 2018. He was perfectly normal and initially meeting milestones.

On March 24, 2018 at 5 weeks, Coen began having seizures and was hospitalised immediately. He has basically been in Starship Childrens Hospital (Auckland) since then.

He has had genetic testing, four EEG’s, two MRI’s, a PET scan and is now awaiting a SPECT scan. The nuclear medicine is enroute from Iran and once this scan is completed Coen will hopefully have brain surgery.

Coen is having on average, 20 seizures a day. They can last anywhere between 2 and 8 minutes. He is heavily sedated with only small pockets of awake time.

The toll it’s taking on Coen is hard to watch as he’s exhausted after every episode.

As friends and family, we feel helpless and want to support Coen, Brett and Helen however we can. The emotional, physical and financial strain on parents with a new baby is tough under normal circumstances but in their world, they aren’t experiencing any normality.

With both parents being unable to work and Coen needing around the clock care in hospital, they need financial support for day to day stuff like parking, petrol, rent, meals.

The staff, nurses and doctors at Starship Childrens Hospital have been amazing. They are fantastic with Coen and their care for Brett and Helen throughout this time has also been great.

Coen is the most adorable little boy and we just want him to have a bright future. Thank you for taking the time to read about Coen, we all appreciate it a lot.