Blaydes World

A message from Blayde;

Hi, I’m Blayde! I’m 4 years old, and I have a genetic condition called Emanuel Syndrome.

When I was born, I made my parents' life super interesting. My airway collapsed (yikes!), and my dad had to help save me (thanks, Dad!). I stayed in the hospital for a while, where I learnt to swallow and get stronger. And guess what? I’m still here, and I’m not going anywhere!

I’m pretty rare—like, finding a unicorn rare! My parents can’t find any other kids like me in NZ, but maybe with your help, we can spread the word and find some new friends.

At the moment I’m doing a lot of cool stuff—like swimming, horse riding, and even working out with a personal trainer! But there’s still a lot of things I want to do, including go to school with my friends, walking, using my hands to play and continuing to rock at life! But… I just need some extra help for that, like special therapy that can give me a big boost!

And guess what? There’s a place just over in Rotorua called The Centre of Movement that can help me, and that’s where you come in.

We need to raise enough funds so I can get to that therapy center. One day, I want to run around with my friends, play in the playground, and go to school in my community.

If you help me, you’re not just helping me live my best life—you’re also helping other families like mine who need support and awareness. We don’t want anyone to feel as alone as we did at the start.

Thanks for helping me and my family! You rock!