Helping Meilah get a Nebuliser

Meilah was diagnosed with Cystic Fibrosis (CF) at the age of 6weeks old, through the Guthrie/heal prick test. This condition is genetic and passed through BOTH parents, affecting vital/main organs, but mainly the lungs and digestive system. Although Meilahs appearance looks normal, her inside speak a different story.

Meilahs daily routine consists of waking in the morning for 20mins of physical therapy (banging on the chest to release mucus from lungs and chest wall), we then move on to breakfast which is of the highest fat content possible (imagine having bacon and eggs etc everyday) well for my 1 year old that is her life, each meal Meilah eats (depending on fat content) she will have and least three tablets full of tiny little enzymes before she eats to digest the food and hold the fat in her system. Eg: 1 egg, 1 bacon piece 1 hash brown or toast with butter + milo Meilah would have to have 6 enzymes tablets for that one meal. We then move onto physical play for about an hour then a nap then repeat from the start. Meilah is unable to attend a kindy or playcenter as most kids would her age, she is also not able to interact with other children with the same condition.

I admit it is very hard being a young mother having two children especially when one is terminally ill.

As Meilah is only 1 year of age physical activities etc are expensive to get into or even buy for the home. Keeping Meilah fit and healthy is so important to increase her life span. Meilah does not live the life of a normal child, she is not allowed to play in dirt etc. Her days are not as a normal child, the get up and go type, even though she is still that little determined independent little girl, her days are just filled with constant medication, physio, treatments and food food and more food.

Our main aim at the moment is to try and give Meilah a "normal" sorta life, to get out and do as much as her brother.