Breathe for Olivia
Olivia has been diagnosed with a rare condition. 1 of 29 known cases in the world. She has no pulmonary artery from her heart to her lung.
Canterbury
Olivia was recently diagnosed with a rarely described entity. One of 29 known cases in the world. She was born without a pulmonary artery leading to her right lung from her heart. Her heart is currently sitting in the middle of her chest due to the huge amount of space in her chest. Her right lung is to be removed due to continued complications with the underdeveloped lung. Should the removal make her heart shift and twist more, a prosthetic will be fitted immediately. It is likely a non-functioning prosthetic lung will be inserted at a later date.
Due to ongoing complications her lung needs to be removed. She is classed as a high Priority. All going well she will be in Starship for 2 weeks before coming back home to Christchurch for recuperation. Unfortunately not all costs will be covered in full so some extra funds are needed to make sure Olivia has the support she needs during her ordeal and Olivia's 4 year old brother, Xavier , has the care he requires during this time.
Jo Heap's involvement (page creator)
Olivia is my precocious 6 year old Granddaughter and I would like to ensure she and her Mother and brother, have all the support they need to get through this ordeal. Olivia has missed out on a lot of school and social interactions with friends due to ongoing illnesses.
Latest update
Frustration is setting in..... 30 April 2015
I’ve come to realise that expectation feeds frustration…..its an unhealthy attachment to an outcome I wish I could control….but can’t. I feel like I’m waiting for something that isn’t going to happen & the uncertainty of it is probably one of the most stressful feelings. I’m going to assume you can read through that trifle you just read and understand that once again Olivia’s surgery has been deferred. We’re on “standby”…..I would argue we’ve been on standby for the last 4 weeks. Note to self: stop expecting
It makes no difference to the kids at this point, but for me the lack of sleep the night before I’m expecting a phone call to confirm it all can lead to some anxious moments.
I focus on why I started this journey for Olivia’s wellbeing and count my blessings.
As someone said to me today…..”time to let that Mama Bear out again”…..true that
If I can pass on any advice, it would be stick to your guns, fight for what you believe in & trust your instincts.
Karen, Olivia & Xavier
Latest donations
Thankyou Carolyn for your support for Olivia's journey. Your kidn & generous donationis very much appreciated. Take Care, Karen, Olivia & Xavier
Thanks Sis & Family.....it means a great deal that you care enough to help Olivia through her journey. Make sure you come see us when we are back. I know the kids would love it! Love Karen, Olivia & Xavier xo
Thank you cousin Jason! Make sure you come & visit Olivia while in Auckland. Love Karen, Olivia & Xavier
Thankyou cousin Mark !!. Be sure to come see us while we are in Auckland. Love, Karen, Olivia & Xavier
Thankyou! Your generosity, support & friendship is valued & well cherished. Love & Hugs, Karen, Olivia & Xavier
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