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Can't ingest food: rare gut condition impacting ability to eat anything

  • Update on the situation

      11 October 2024

    My brother got advice to post an update. We are very grateful for all the help we got this year, without it we would be doomed.

    Right now my lovely brother is having a very hard time sadly. His medical care is extremely bad and he has to rely on this expensive method for a long time until they get their act together. He only has one month-worth of funds left approx. We still need help really badly because if he runs out of funds he won't be able to eat any food and also won't be getting medical help. His assigned public system gastro specialists have not come up with any plan despite seeing him first in Dec. It has been so bad he is going to lodge a complaint but has so little energy to do this he is really struggling.

    Anyway, your help is still welcome and needed and if you can't that's OK we appreciate all those who have helped already.

    Love,

    Amira

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  • Thank you and an update

      28 March 2024
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    Thank you all for your help so far. My brother could not afford to eat any kind of food at all without the help you gave in these last few months. He never imagined he would have this level of support.

    He had a severe reaction to a meal a few weeks ago which made him very unwell for a few weeks although he is now better. More importantly, he has no specialist at the moment because the one assigned by the government cannot deal with this complex case. His GP is trying to get the govt to assign him a different specialist.

    We are afraid of needing to go private. A big issue as this would mean he can't use the money for fermented drinks as long.

    This is the update - otherwise, there is nothing new. He is just doing what he needs to do, every day is taken up by arranging every meal and little else.

    Thank you!

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