Can't ingest food: rare gut condition impacting ability to eat anything

$7,121 of $17,500 goal
Given by 244 generous donors in around 3 months

Help with costs for ingesting anything organic (food & drinks, except water) because of a severe superbug gut infection

Christchurch, Canterbury

My lovely brother has a debilitating & life-threatening condition. It is diagnosed as 'Severe Functional GI Disorder'. He can only eat with unfunded strongly fermented probiotic drinks to subdue gut superbugs. The symptoms are often severe. Please read on, donate, share & encourage others to help.

His specialist advises that he do this "as long as possible" for the safety of future medication use. The bacteria have developed resistance to previous antibiotics, increasing the risk of further mutation. So I set a fundraising goal for over a year's costs.

Probiotic culture, fermentation ingredients, & nutrients/supplements are roughly $1075 monthly. Not counting electricity costs for warming up the oven for fermenting jars many times daily. More info:

• Diet is limited to 3 items of food

• Was hospitalized from Nov-Jan 22/23 & for a week in Feb/23

• Lower legs & feet were paralyzed. They improve slowly only as his condition does

• How well he is depends on how each meal goes

• Condition advanced from severe 'Small Intestinal Bacterial Overgrowth' to 'Severe Functional GI Disorder' due to antibiotic-induced bacterial mutation

• Govt disability max is $70/week. So far in 2024, he gets nothing, but his GP helped apply

(Note: The main pic is from his time in the ICU, not recently. Pics below are of my brother, me & the fermenting. Give A Little carefully confirmed matters including from medical records)

Use of funds

Your support covers essential probiotic cultures (Body Ecology & The Kefir Company), daily fermentation necessities (milk & coco water), & vital supplements (key vitamins & minerals depleted by his condition). If donations are enough, we might see a specialist in the private market.

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Latest update

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Thank you and an update  28 March 2024

Thank you all for your help so far. My brother could not afford to eat any kind of food at all without the help you gave in these last few months. He never imagined he would have this level of support.

He had a severe reaction to a meal a few weeks ago which made him very unwell for a few weeks although he is now better. More importantly, he has no specialist at the moment because the one assigned by the government cannot deal with this complex case. His GP is trying to get the govt to assign him a different specialist.

We are afraid of needing to go private. A big issue as this would mean he can't use the money for fermented drinks as long.

This is the update - otherwise, there is nothing new. He is just doing what he needs to do, every day is taken up by arranging every meal and little else.

Thank you!

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Latest donations

Guest Donor
Guest Donor on 10 Apr 2024
Private
Paula
Paula on 09 Mar 2024
$10
Guest Donor
Guest Donor on 08 Mar 2024
$1
Moses
Moses on 08 Mar 2024
$20
saten
saten on 07 Mar 2024
$5

Who's involved?

Amira Abaza's avatar
Created by, and paying to a verified bank account of, Amira Abaza on behalf of Ahmed Abaza
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This campaign started on 13 Jan 2024 and ends on 13 Jan 2025.