Building up Reinforcements for Ryan
Raising funds to support Ryan and his family in his epilepsy journey.
Rotorua, Bay Of Plenty
Ryan (17) has battled with a complex, debilitating, drug resistant epilepsy for 5 years. There's no cure and he's at high risk of SUDEP.
Friday 8th January, Ryan had seizures that wouldn't stop, was put into a coma and flown to Waikato Hospital ICU. He remains there with difficulty bringing him out as he has seizures when falling asleep / waking up.
His parents are both by Ryan's side.
(Ryan also has 3 younger siblings.)
They are grateful for any support towards the care of Ryan currently and for his future needs
- Queen bed
- Seizure Alarm ($2000-2500)
- Accommodation / travel
- Cover loss of Kelly's wages during rehabilitation
- Rehabilitation requirements
- Exercise / Gym equipment
- Further testing in Australia hospital
Further info on SUDEP
https://epilepsy.org.nz/managing-epilepsy/health-and-wellbeing/sudep/
Brooke Withy's involvement (page creator)
Kelly (Ryan's Mum) and I have been friends since intermediate school (30+ years)
Use of funds
Donations will be spent on a seizure alarm required to keep Ryan safe, exercise equipment and so Kelly can take time off from work to support Ryan at home.
Latest update
The journey still continues........ 18 February 2026
Praise God, Ryan is back home in Rotorua with his family.
There is still a long way to go with recovery.
Kelly is off work helping Ryan rebuild strength and confidence. He is having infusions in hospital for 2 days, every 4 weeks. He has gone on a strict medically guided Keto diet which is expensive, time consuming and hard going for Ryan.
Night times are long with focal seizures and the family is not getting much sleep.
Ryan is awaiting a further trip to Brisbane hospital for surgical brain testing.
The family are grateful for funds for all these ongoing costs and treatment follow up. They are especially grateful Ryan is alive, as hard as it is supporting him with his debilitating epilepsy disorder.
Every prayer and dollar helps the family support Ryan. Thank you for continuing to follow the journey.
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