Carters seizures continue to cause him extreme respiratory distress.
While we have been managing this at home so far it is not fair on us to be doing so and in the event that Carter does not self resolve after a seizure as he usually would the emergency help he would need would not be readily available. So for the foreseeable future he will be staying in Dunedin hospital.
The doctors are looking at options and trying different medications at our request to help stop or at the very least reduce the severity of his seizures so that he doesn’t stop breathing with each one.
There is no guarantee of these medications working but there is no harm in trying and we want to exhaust all options possible.
The keto diet requires on average a minimum of 3 months to work so our goal is to reduce the seizures as much as we can for now until the keto (hopefully) takes over as his main seizure control.
In the interim we hope that he does not deteriorate mentally with the severe seizures he is having. We have discussed with the doctors that they are to do everything they can to save Carter’s life in the events that it would be required.
If we are unable to gain seizure control and his condition is deteriorating we will then have to look into palliative options and make sure our beautiful boy is as comfortable as can be for as long as humanely possible.
