COGY (Pedal wheelchair) for Jaime
The Cogy pedal wheelchair gives Jaime the benefit of physical activity as well as the joy of being able to get around under her own steam.Auckland
My daughter, Jaime is 13 yrs old and has Rett Syndrome, a genetic brain disorder caused by a mutation in the MECP2 gene.
Jaime is a very social and happy girl, she loves going out shopping, to the park, library, visiting friends etc. Yet, because of her condition, Jaime has very little opportunity for physical activities. Having her own cogy, pedal wheelchair, would radically change that. We would love to raise the funds to get Jaime a cogy for Christmas.
Jaime spends most of her day confined to a wheelchair, at present she is able to do standing transfers from wheelchair to toilet, walker, standing frame etc without a hoist. Keeping her joints supple and her legs strong (and doing it in a fun and enjoyable way) is crucial for being able to continue taking Jaime out and about and enjoying life.
We are more than sure that COGY will be beneficial to her physical abilities. One example is, her co-ordination to take a step with her left leg was remarkably improved after her first trial with the cogy. (Normally she can pick up and take a step with her right leg ok but it is more difficult for her brain to get the message to her left leg and she generally just lets it drag.)
If Jaime had her own cogy, it would help to keep her joints supple, strengthen her legs and help to build muscle memory and co-ordination for standing and walking.
The cogy would also help with circulation which is very poor in her legs and feet.
Being in the cogy gives Jaime the abilty to enjoy physical activity in a fun way and to be able to get out and about with minimal assistance and a feeling of independence. When I tell her that we are going to meet Koko and go for a pedal in the cogy Jaime's face lights up with a big smile. (She used to love horse riding, unfortunately since having spinal fusion surgery in April this year that is no longer an option.)
The cost of the cogy is around $7000 as we need a few extra accessories on it because of Jaime's disability.
Use of funds
Money raised will be used to purchase a cogy for Jaime. If we cannot raise enough we will apply to various trusts and fund raise. If more money is raised than required we will donate it toward a cogy for another person.
Other page links
Last month we applied to the Wilson Home Trust for the remaining $3000 that we needed and have just received a confirmation letter saying that they will give us the money, wohooo!!!
Will update with a pic when we get Jaime’s new cogy.
Huge thanks to each and everyone of you who supported us in this.
We couldn’t have done it so quickly without you.
Lots of love 💕 from Jaime and family.
Thank you so much for your support Mirjam. Jaime loves the work you do with her. She especially loves telling everyone about the glitter bottles.
Wow! Thank you so much for your awesome support. We are now over half way there. Amazing Love Jaime and family
Thank you so much for your support. Love Jaime and family
Thank you so much for your generous support Heather. We hope so too. Love Jaime and family
Thank you so much for your very generous support. Love Jaime and family
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This page was created on 11 Oct 2018 and closed on 10 Apr 2019.