Mum with a rare neurological condition needs help to get overseas for urgent medical treatment before it’s too late.
Wellington, Masterton District
Hi, my name is Tash; and I am a 32-year-old mum to 2 young children who lives in New Zealand. I have been livestreaming my journey the last month or so on a gaming platform called Twitch. I’ve had a rare neurological condition called complex regional pain syndrome or CRPS for the last eight years. My CRPS developed after carpal tunnel surgery on both hands over 8 years ago. CRPS is rated the most painful condition on the McGill pain scale, higher than the pain from childbirth or amputation. I would know I’ve had two kids naturally... CRPS is nicknamed the suicide disease: it causes severe nerve pain and there is no standardised treatment in New Zealand. Doctors in here don’t know what to do to with me. CRPS feels like being wrapped in barbed wire, while being set on fire and then electrocuted. It can change as quickly as the lights on traffic lights. One minute you can be smiling dealing with the pain and the next second it’s excruciating, and you’re paralysed. In the last few days, I have lost my ability to walk, and I am now in a wheelchair... I can feel it spreading inside my body now... and I can feel it happening fast. There is no proper treatment in New Zealand for CRPS.. Please help me, I can’t be this pain much longer it’s more than anyone should have to live with. I wouldn’t wish it upon my worst enemy.. I deserve a chance to have some quality of life, to be able to hug and kiss my children again and my kids deserve a mum. This is no life…
Updated on 12/07 - Flights to get to Italy for Tash and Josh, living costs and medical treatment/aftercare (which includes 4 Neridronate infusions and Clodronate infusions, Light therapy, Biophysical therapy, sessions of Neuromuscular Re-education, Osteo-articular and muscle manipulation as well as a registered nurse, translators, airport pickup, accommodation, food, visits with the CRPS specialist/doctor, a dedicated Patient Care Coordinator and priority-line booking at the Hospital)
Update 4 September 2024
Hi to everyone that’s donated so far I wanted to say thank you and we haven’t quite made it and we’re gonna need more money than we originally thought so it’s looking like we’re going to have to sell our house as well.. I tried to post an update the other day with photos of my electric wheelchair that I was able to buy with some of the donations. I don’t know what happened to that update but thank you everyone having that wheelchair has enabled me to get some independence back and be able to do With my children again, And just feel more like A real human being. We are getting things thrown from all sides still, I am still down and not and traumatised by people who supported me and loved me.. It’s breaking my heart. And there is nowhere we’re gonna break our family apart. I just wanted everyone to know that we are still fighting with everything we have and we will go to the ends of the to get this treatment.. I promised to post a better update with some photos and things like that in a couple of days time. But my health is getting worse and worse and I am in so much pain every day. But we remain positive and we are trying to manifest healing and positive energy, and we will never ever give up hope x
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