Cure For Mayuri

Mayuri was born in 2009 without any birth complications.When Mayuri was 3, her parents made the decision to relocate to New Zealand. By the age of 5, she began attending school as a cheerful and friendly little girl. At the age of 8, Mayuri's teachers noticed an unusual difficulty while she was writing. Following a series of blood tests, MRI scans, and DNA tests, Mayuri received a diagnosis of H-ABC, an incurable and rare condition. This condition led to several severe complications as it progressed, including Dystonia, Scoliosis, and consequent anxiety for Mayuri.

On May 28th 2023, Mayuri was hospitalised due to severe vomiting. Doctors diagnosed her with SMA (Superior Mesenteric Artery) syndrome. Due to SMA syndrome, Mayuri faced additional complications during her hospitalisation. She lost her ability to eat, walk, and talk, and her scoliosis worsened, leaving her bedridden. She became dependent on Total Parenteral Nutrition (TPN) for daily nutrition, as she could no longer eat or taste food.

After 8 months in the hospital Mayuri was discharged and returned home. However, her scoliosis continues to worsen, causing her significant pain and discomfort that affects her sleep.

Mayuri's high-risk status has led doctors to decline spine correction surgery, leaving her facing lifelong suffering without intervention. We're raising funds to take her abroad for the surgery she needs, offering hope for a better future.