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A year on, Dee's fight against Asbestos cancer starts again

  • Dee is at peace now

      6 December 2016
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    Hi all - after a tough battle Dee passed peacefully at North Shore Hospice surrounded by the people she loved and those that loved her. Brave isn't a word for this girl - that word doesn't do justice to her fight and courage.

    On behalf of Greg and all her family, thank you so much for your support and funding which went toward treatments that gave Dee an added 8 months of her life.

    That time - absolutely priceless. Thank you.

    All our love and Dee, rest in peace beautiful xxx

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  • Dee R1 Take2 of Keytruda

      13 November 2016

    Hi All just a quick update on Dee's progress. Following the unwanted scan results Dee has undergone another round of Keytruda last Thursday. We will monitor and likely have 3 more rounds but the very, very early signs show some positive despite her condition not being so great. Her spirits are up like they haven't been in the past 3 months though, so that's great. Cheers Greg

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  • Dee's battle starts again

      19 October 2016

    Hi all, thanks for your support of Dee, it is so much appreciated. Unfortunately Dee’s latest scan results last Friday were not what we wanted or expected. The cancer has fought back again and has progressed in numerous areas with new growth and new challenges. We’ve decided it’s just too much for me to look after her, work as a means for our only income and look after two students which have been a godsend financially but too much work when the focus has to be on Dee.

    I will say, this Government and the systems in place to help are non-existent. We get no help from WINZ or ACC, because I earn over $40,000 (in Auckland). So we are forced to beg, borrow and if it comes to it in the future, steal, to give her the treatment she needs to live. The people of New Zealand should be proud of how they have supported Dee but the New Zealand Government and the systems in place should hang their heads in shame. If you have money up against an incurable disease, you live (or get a greatly bigger chance), if you don’t have hundreds of thousands you are on your own.

    Cancer treatment in this country is disgusting. It’s a money game everywhere you look and I will tell you right now there are people within this system who rip off the sick.

    We’ve been fighting over a year now, and she’s done far beyond what any human can be expected of or asked of them. She bellied the 3 week prognosis in February, but now she – we – fight again. They gave her no chance… the experts. I remember back to the beginning of this when we were told that half the experts at Auckland Hospital wouldn’t have even treated Dee based on a chances Vs cost analysis. That is the system in which we live in. Well all I say to that is Dee survived, and what price can you put on the extra time she’s had? Those doctors, who count treatment with dollar equations should be kicked out of the profession. There are plenty of great people in the system, but at the end of the day the only people that we truly have been able to rely upon is Hospice and their wonderful staff.

    So we fight again. The ACC hearing carries on at snail pace (another perfect example of NZs cookie-cutter approach to cancer). Everyone gets months to submit, decide, then more months and more months. It truly is an absolute farce.

    But we want to thank you. Without you Dee would not have had the extra time. We cannot say thank you enough.

    Cheers

    Greg (on behalf of Dee)

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  • Dee continues to amaze

      12 September 2016

    12/09/16 Hi all, Dee's now putting on weight! Eating well, pushed herself through 10 rounds of radiation on top of everything she is already facing. Next CT scan should be very interesting. Without your support who knows where she would be - the miracle continues. THANK YOU ALL SO SO MUCH! x

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    • 06/10/2016 by Leigh

      Hi Dee its been a while since we had contact over your delightful little friend Charlie:) So pleased he is by your side helping you through this. Big hugs, your an amazing lady, Leigh x

  • Dee begins radiation

      30 July 2016

    30/7/16. Hi all, Dee keeps saying bring it on and is now four rounds of radiation in. Her pain is quite intense (normal but hard to see her like that) as we attack the Apex of her right lung, an area that has bucked the trend of other areas which have decreased in size. The Apex has enlarged. She finishes radiation Monday week, having gone through 10 rounds. Likely to be a story in the Herald on Sunday 31/7 (tomorrow). Thanks to all - your help is so, so appreciated.

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  • Dee's tumors shrinking (R7 Keytruda), starts radiation therapy

      11 July 2016

    Here's the latest piece from her oncologist: "Clinical improvement. To continue with pembrolizumab.

    CT scan. Unvalidated report suggests significant response with some tumour having shrunk from 28 to 12mm. Several areas slight growth, apex and lymph node although, in the context of clear response, this may just be a T-cell immune mediated effect. Marked improvement in quality of life and performance status. To continue with Keytruda." ****

    So still costing a fortune we don't have, but money is nothingto the smile she now has on her face. Times are still tough, she is fighting the physical, emotional and financial but she is doing so well. Nearly 44kg!!!

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  • ACC turns us down and Charlie goes on TradeMe

      1 January 2016
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    ***Lovely Leigh won Charlie on the TradeMe auction and with such generous spirit bid $100 and then told Dee she must keep Charlie with her as "she needs him". Thank you so much Leigh x***

    ACC has given us a report and said unless we provide new information they will not be able to accept Deanna's claim as she wasn't an employee when exposed to asbestos. On another note, 'Charlie the chemo critter' is on TradeMe to raise some money. Other than that, Dee is losing some weight which is a constant battle, but fighting with all she has every moment of the day *smiles*

    http://www.trademe.co.nz/toys-models/soft-toys/stuffed-animals/other/auction-1007148936.htm

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    • 09/01/2016 by Bruce

      Hi there,

      I am sorry how this sounds, but my wife also contracted this cancer when she was only 46 years old. If Deanna has life insurance, check if it pays out if you contract a terminal illness, We were able to get a payout to fund treatment, but you have to get your head around making a claim for something that the doctors tell you is going to happen.

      I wish you all the best Bruce

    • 09/01/2016 by Greg Robertson

      Hi Bruce, thanks for your message, Greg here. Murphy's law, as we were going through fertility treatment to have our first child we had just been discussing life insurance. Guess it's one of those things you really don't think about until kids are involved and you are looking out for them. So, no life insurance hence the givealittle page. Thanks again

  • NZ Herald article and full interview

      13 December 2015
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    *******************************

    NZ Herald article on Dee...

    http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=11560472

    ******************************

    Deanna on… How are you feeling about all of this?

    I got the news when I was alone. My doctor turned up out of the blue, didn’t ask for my partner to join me and told me. Greg had spent about $600 on parking back and forth to North Shore and Auckland {hospitals}. They knew well I had a partner because he just about was always there.

    The word cancer is something no one wants to hear and like many people never expected to. I just sat there on the bed alone and then curled up in a little ball like a baby crying and crying. Asking why me? It’s not fair. Then I called Greg to tell him the news and he rushed in through rush hour traffic. It took a while to get that strength. I mean what do you say? I could only say it was cancer.

    He got angry at the doctors. I guess they were the easy target. Then we both cried, well Greg cried and I just sobbed and then we talked about how we were going to beat it and whatever it took we would do.

    The doctors giving me the news alone was hard, but it really was their only slip up. Right throughout this they have been amazing.

    At least I knew. A real hard part was the in and out of hospital for tests and stays and not knowing. I just wanted the doctor to say it’s a crazy infection and we can fix it. But it wasn’t that one. When I’d gone for an xray one of the nurses had said my left lung was fantastic but the other one was just a mess. I guess by this stage though you are also preparing yourself for the worst. Each bit of bad news adds up little by little and although you are hoping for the best you are hardening for the worst. It still doesn’t prepare you for it. There’s a flow of emotion you have like you’ve never had. All at once. I still get these now.

    I know what the disease does and I know the odds. I do recognise that I have a big fight and long journey but it’s still surreal. Not as surreal as what it was, but it still is.

    I still feel that I’ve been ripped off though, not able to become a mum. We got the last fertility bill last week. I felt my heart sink.

    Deanna on… finding a cure and her fight

    I’m relying on the people around me. I’m focussing on the cancer the nutritional, physical, spiritual and emotional stuff. There’s so much information. I’m lucky my family and friends are giving me their time so I can give me time, without them I don’t know where I would be. Whatever we decide I will be ready for it. So for me I heard that fighting cancer is 1/3 physical 1/3 heart and a 1/3 head. That hit home so I’m starting with my diet. I’ve always eaten well, but I will have to do better. Cancer doesn’t like sugar so that is gone. Meditation. Yoga if I can. The spiritual side. I’ve taken out a lot of books on a lot of topics so I will start by reading and taking out what I like and makes sense to me and putting it into practice.

    Deanna on… What are you hopes for the future

    It’s not about the future. It’s about the now. I think when I got diagnosed with cancer my thinking has gone through so many levels. First I was selfish, only thinking about how this affects me. Why me? I’m potentially dying. It took me a while not to use words like ‘potentially’, ‘possibly’…. anything with a little bit of hope before having to use the word ‘dying’. Then it was worry about Greg. My family, friends. You go through the cycle and eventually you come back to you. And you see your whole; your world and who and what is important to me. And they all live in the now. The cancer lives there too, so it’s the now that concerns me because it’s here with me and all that I love. The future sort of becomes a dream more than a hope, because as time ticks by you are face-to-face with so many realities that have been and are out of your control. Real diagnosis, real pain, so many facts. You numb and harden. I hope I do harden some more. This won’t be an easy fight. I need all the strength I can to get that control back. After that, and I’m clear that’s when I will start talking about the future. If others benefit from my journey, then it’s win:win. I wouldn’t wish this on my worst enemy so if my discovery helps someone else yet to be diagnosed with mesothelioma well that thought makes me smile.

    Deanna on… people

    Everyone has just been incredible. The positivity drives me and their support and love I can feel. It’s in the darkest moments when people shine the brightest. Thank you.

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    • 13/12/2015 by Tania

      Hi Deanna and Greg

      I'm so sorry to see you are having to battle this awful disease

      Just wanted to let you know about Pawpaw cell reg

      A product from natures sunshine

      I came across it in my dads battle against mesothelioma and he used it with great effect As an elderly man with no treatment as he had what they deemed a poor performance status

      It can be used in conjunction with conventional treatment however and there is a lot of information around this on line amongst Mesothelioma survivors

      And yes they are out there

      If you have any questions feel free to contact me on

      pandtcurrie@xtra.co.nz

      Tania Currie

  • ACC funding

      9 December 2015

    We have applied for ACC funding although we have been told due to current rules not to hold out much hope as you have to actually work or had previously worked in an asbestos relevant workplace to receive the lump some payout of about $140,000.

    Given we - inlcuding oncologist and Auckland Hospital's Director of Cancer and Blood Dr Richard Sullivan - believe Deanna was a child when exposed to asbestos, we are not sure where we stand. And to be honest, right now we have to help Dee in the much bigger battle she faces.There are a couple of court cases in New Zealand going through process where the spouse (diagnosed with mesothelioma, washing clothes, close contact etc) of an asbestos worker (electrician, builder etc etc) is facing off against ACC. It does seem a little unfair... didn't the workplace come home?

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    • 09/12/2015 by Abbey

      Hi Greg...I've sent my email address with my donation...would like to help by researching...i imagine you have been to the "surviving mesothelioma website"...on there, there is a new article published three days ago about a drug called "keytruda"....article is by Alex Strauss...it works on the autoimmune response of the body...and has recently unprecedented success...need to read...apparently less side effects than chemo and radiation therapies...also, as an idea...perhaps getting on a clinical trial in the USA if Dee is well enough to travel...there are multiple Trials on pleural mesothelioma going on, and looking for candidates...I could help research and apply...please send dee my love...am thinking of her xx

    • 09/12/2015 by Greg Robertson

      Hi Abbey, Greg here... thank you so much for your concern and your offer to help research. We've been fortunate enough to have a really good network of support set up, and we've already had someone visit the US to see what options are out there. Right now, chemo is vital for Deanna. And she's responding so well. I know chemo as a whole has a bad rap but each is individualised and Deanna is having no side affects which is great. Once we go through the chemo process, it opens her up for trials (you have to go through chemo first for most trials). We've got people working on a variety of options and gathering information on many, many things. There is a lot happening and in progress to find a cure for pleural mesothelioma! :-) I've passed on your email address to Deanna and she will get in touch. We've managed to maintain her weight for some time now and that has been a massive battle in itself, halting the weight loss but the chemo, her determination and plenty of food and drink options has really helped. I find myself cooking 24/7!! :-) Thanks so much again Abbey

    • 09/12/2015 by Abbey

      Awesome...that's great news Greg...and so pleased she has you and close friends helping...I would like to give you what I can...ill start with a weeks meals on me...my cousin owns "the village kitchen" in devonport...they make super healthy meals each day and deliver...can you let me know delivery for you and Dee, and when would be the best day to start the week...this would give you a bit of a break too...and having spent weeks in hospital, I understand how the crap the food is!!...you can check out the village kitchen on Facebook, and on her website. I think they are gluten free etc...beautiful meals...I'll call her now...perhaps we can text and or speak when you're free...my phone number is 0211184189:)

    • 10/12/2015 by odette

      Personally, I think any persons (current/or past) living with a person who has or is working with asbestos should be able to make a claim, provided they can reasonably prove they have come into contact with asbestos through that person.