Jess and Brent have asked for donations in lieu of flowers as they want to be able to help support another family in need.
Otago
On Thursday 29th October Leo Leask Roberts passed away peacefully after a courageous battle with mitochondrial disease. This page has been developed to assist other children and their families who are currently fighting a challenging health battle.
Leo has taught us all how to be courageous, resilient and brave and to appreciate the smallest things in life. He wants us all to remember that it’s essential to have a positive attitude, fight and determination in life.
Leo was diagnosed with mitochondrial (mito)disease and his short time here has been full of challenges. Leo had a rare form of mito called Megdal syndrome. There is very little information about Megdal so we talk about Mito disease. Mito is a disease which affects the power/energy source of our bodies and it is Debilitating and reduces the ability of the mitochondria to produce energy. When the mitochondria are not working properly, cells begin to die until eventually the whole organ systems fails and the patients life itself is compromised. We do not have a mitochondrial foundation in NZ but for more information please look at www.mito.org.au
I am Leo’s Aunty and have been supporting them from the beginning to the end.
Brent and Jess would like to support another family in need and ring fence some money to donate to the children’s ward at Dunedin hospital. This money will be paid to them.
With heart felt thanks 6 November 2020
Jess, Brent and a Heidi would like to thank you all for your love and support since Leo passing. The messages, baking, phone calls, flowers, and emails have given them strength to place one foot in front of the other. Leo had a beautiful farewell and it was a privilege to have so many friends, family and hospital staff present to remember and celebrate Leo’s life and send him off with love.
Jess, Brent and Heidi are now taking this much needed time to rest, connect and heal as they continue to move forward with Leo forever in there hearts. Thank you all so much, your love and light will never be forgotten.
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.