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Dylan Schilders Journey

  • 10/07 What a ride it has been

      10 July 2020
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    I wish I could tell you how many days it’s been since Dylan was admitted to the hospital and I’m sure if i asked Sarah she could tell me exactly how many days it has been along with how many hours we spent in hospital and all the tiny details my brain just couldn’t retain. It’s been a hell of a ride and I think after this update there may only be one more, one more for the goals Dylan will hit soon.

    Dyl, Sarah and Leo came to Wellington to see all of our family and friends. They spent a month here which was amazing. Sadly, they flew home last week. There’s nothing like almost losing someone you love to make you realise that the short plane ride to Dunedin is still too far away.

    But it’s time for Dyl, Sarah and Leo to start the next chapter of their lives, although this chapter will never be completely closed, the outcome of all of this is nothing short of a miracle. Dylan and Sarah are expecting another beautiful baby soon and now that they’re home, healthy and happy they can start preparing for the baby properly!

    Dyl has his hearing aids all set, hopefully soon we’ll know when he can go back to work and drive. Those are the goals you’ll be hearing about soon!

    To look back at how far we’ve all come, I am speechless and it’s extremely hard to write this all without reliving it all. But we made it. Dylan made it. The strength my brother has is astonishing. The strength Sarah has is admirable. Our parents, throughout it all were incredible. I think I can speak for everyone when I say the thought of an existence without Dylan was devastating and it ripped us all apart in ways I can’t even explain. The worst is over, the journey we all face now is unknown, but we all get to face it together, with Dylan. And that’s all that matters.

    So thank you, for taking the time to read this, for the messages, the financial support, the hugs, gifts, food, everything, a shoulder to cry on, a phone call. Every single thing adds up, it all adds up and it all held us all up throughout a time where everything was unknown. Every single act of kindness/love has built the path we walked on to make it here.

    Strength grows in the moments when you think you can’t go on but you keep going anyway.

    Love and light,

    The Schilder’s and Griffiths’.

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  • 28/05 Dylan is HOME

      28 May 2020
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    After the longest 6 weeks of our lives Dylan is home. He was discharged from Isis rehabilitation yesterday.

    He’s settling in at home really well!

    Rehabilitation will continue in the community.

    Appreciate all the support we have had over the last 6 weeks it has been incredible to have so many people surrounding us all with love!

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  • 23/05 Rehab!

      23 May 2020
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    Hi all,

    Dylan has been at rehab for his brain injury for over a week now. He’s making really good progress. He transitioned into a flat to gain some independence. We’re not sure how long he’ll be at rehab but he is doing really good considering 3 weeks ago he was in a coma.

    Thankful for the ongoing support and all

    the donations we have received. ❤️

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  • 15/5 Rehab time!

      15 May 2020

    Hi everyone, quick update on Dyl.

    He was reunited with little Leo yesterday morning after a month. Both very happy to be reunited. 💚

    Dyl was transferred to a rehabilitation yesterday and is settling in well.

    Thank you all for your continued support on this journey!

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  • Double update

      12 May 2020

    09/05

    Hi everyone,

    It’s been 3 weeks.

    Dyl has moved from ICU onto a ward!

    He is now talking a lot and drinking moderately thickened fluids. He’s got a nice selection of flavoured fruit drinks that he likes. Nurses are allowed to trial purée food this weekend if he’s alert enough to tolerate it.

    We helped walk him last night after a failed attempt at using a sara steady and gutter frame - he’s way too tall for their equipment but managed to walk with 2-3 of us assisting.

    He is very confused and disorientated which is to be expected so even though he has had these massive gains he has a long way to go cognitively, but that is ok! He will get there in time.

    Sarah and I were allowed in together to settle him into the ward but we’re unsure of what it will

    be like today.

    Many accomplishments in a small frame of time! And many more to come! 🙏🙏

    12/05

    Hi all,

    Dyls been on the ward for a few days now.

    He’s gone from walking with assistance of two to walking with close supervision. He’s had a few falls as he’s really impulsive and his spatial awareness/depth perception is impaired. He’s still on moderately thickened fluids. Very confused. He has tried to leave the ward a few times. He’s 1:1 with a HCA due to him being confused, a falls risk and a absconding risk. His NG tube came out accidentally but they aren’t planning on putting it back (yet) we need to get him eating more which is difficult when he doesn’t like the purée meals.

    He has been referred to ISIS for rehabilitation (which is here in Dunedin) we’re not sure when that will happen.

    Sarah and I are still allowed to go see him together to tag team looking after him as he does get agitated and seems to settle with us there.

    Another day 💚

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  • 7/5 Smashing his goals

      7 May 2020

    Hi all,

    Dylan has been doing more standing with physio and spending time up out of bed in a cloud chair.

    His tracheostomy was successfully removed this morning and Dylan will be moved out of ICU to a ward tomorrow.

    A few days ago he mouthed some words while on video call to his son. He was being his cheeky self and pulling all sorts of faces at us all.

    Everyday brings success and he is progressing really quickly! We are all so proud!

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  • 3/5 Another gain!

      3 May 2020
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    Hi world,

    Dylan had physio today - 3x physios to attempt to sit him on the side of the bed.

    Dylan stood up with their support. They didn’t ask him to he just did it.

    Unsure of how long.

    But he STOOD UP.

    He didn’t try and take a step.

    We are SO happy. Another day ❤️

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  • 2/5 Update on Dyl

      2 May 2020
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    Hi all, update on Dyl!!! 💚

    No more dialysis so his kidneys are doing better! Liver is also doing better!

    HE IS SMILING and using his EYEBROWS to communicate!! 😄😄

    Physio tomorrow to try and sit him on the side of the bed/maybe get him into a cloud chair. Boom lazy boy if successful.

    Today is a good day!!!!

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  • 29/04 Update on our Dylan

      29 April 2020
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    Hi everyone 💚 an update on our Dylan,

    Dylan now has a tracheostomy. He was more alert yesterday when Sarah visited - awake/alert but again they are still trying to see if he is responding appropriately eg opening his eyes on command, tracking with his eyes/responding to voices and following instructions. I’m unsure if they’re using the Glasgow Coma Scale or Wessex Head Injury Matrix on Dyl but I’ll ask next time I visit. Give them a google 🙏

    Today when I saw him he was exhausted as he had a massive day getting his trache put in and slept for 29 minutes of the 30 I was allocated. Dialysis is still ongoing. Still unsure about brain damage.

    At this stage we are allowed 1 person to visit each day for 30 minutes. The plan is to rotate between Sarah, my parents and myself. Things may change but at this stage we are very very grateful.

    Tomorrow is another day.

    Thank you to everyone who has commented/messaged kind words of support & given donations on our give a little. 💚💚💚

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