Dylan's second brain surgery
Help Dylan and his family through his second brain surgery and recovery.Waikato
Hi everyone (:
My name is Dylan Bowman, I am 23 years old and on Monday the 13th of May I will be having my second brain surgery.
2 years ago (21 years old) i was diagnosed with Ependymoma (a rare, incurable, aggressive, cancerous, tumor of usually the spine or brain stem, mine had grown in a unknown place of the brain where it wouldn't usually grow, in the right-parietal lobe) Quite literally shortening my life. Due to the unknown growth location, my neurologists/neurosurgeons couldn't give me a definite on how long I had left.
Previous to that I was mountain biking, motorbike riding, swimming and working full time as a chef when my left side gave up which had me sent to hospital.
I had surgery and radiation treatment to prolong the worst outcome.
FAST FORWARD 2 YEARS I have been working full time at Duck Island Ice Cream making delicious ice-cream, and part time at Create Video, flying drones and creating awesome video content.
I've recently joined the AYA (adolescent young adult) Cancer Network Advisory Group, to help advance the care for young adults through their journey with Cancer.
February 2019 I had a routine MRI scan, the results came back with a small mass that had grown in the bed of my last surgery. At this point, we didn't know what it is or when it grew. It could either be another tumor or a scar from radiation. As it was so small my neurosurgeon and I made the decision to wait and see if it grows, meaning people who need surgery right away could have it and I wouldn't waste the surgeons time.
April 2019 I had a follow up scan and it has grown so now I'm having another surgery to remove the mass.
I'm living away from home, making the most of what I've got, and what I have to give.
My goals after surgery are to eventually work full time again, get back on the bike and enjoy life as a young adult.
My previous Give a little from my first surgery raised $11,101. These funds helped with travel costs to bring my family from far and wide to visit. Also with Physiotherapy, treatment and helping me get back up on my feet.
Here's a link to the previous Give a little, https://givealittle.co.nz/cause/dylanbowman
Use of funds
The use of generous funds raised will go towards supporting my family and I through this hard time, treatment, travel costs and therapy.
Other page links
Staples finally out on the 29th of May
Meaning I'll somewhat be able to rest my head on a pillow comfortably
Mid June I will start Stereotactic Radiotherapy to help with stopping/slowing down the tumour if it decides to come back.
Apart from that
I'm doing well, im walking 2-5km daily and spending time with family and friends.
It's a long and slow road ahead of me recovery wise but I'm taking it head on
Thankyou all for the support and messages
Have a great week!
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This page was created on 10 May 2019 and closes on 10 May 2020.
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