Ellie is 21weeks old with Chronic Lung Disease, and currently has critical Pneumonia from severe aspiration. Because of Ellie's chromosome
Nationwide
It is unknown at the moment what will help Ellie in the near future, and being so young and her lungs are already so badly damaged there's many options to look at round the world. As parents your only instinct is to fight for your child and fighting for Ellie is what we will do. www.facebook.com/ellie.green.9440
Off the Ventilator 4 August 2013
Ellie has worked all week very hard to get to this point where she is now off the ventilator and breathing on her own!! She did 3 days on the sweedish nose which is basically an attatchment to the end of her stent and she has been breathing room air. Has a small wheeze at times throughout the daybut it goes away. Ellie has done so amazingly well in the past 2 weeks, and has definitely defied the odds here at starship, where they didn't think Ellie would make it, (several times). We have got one small hurdle to overcome, Ellie has had a bulging Fontanele, which has gone down a little bit now, and has had a Cranial Ultrasound through the fontanele, which showed a small bleed. They are keeping an eye on her head circumference and an MRI has been booked for the 13th august.
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