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Emma's story

  • Farewell

      22 February 2018

    Dear Friends,

    Sadly Emma took a sudden turn for the worse in the last few days and died, with Matt by her bedside, on the afternoon of 20 February. Her family were all with her and she fought to the end with all the strength she had.

    Everyone has been so generous and Matt would like you all to know that your willingness to support the family and give Emma the chance of treatment has meant a great deal to them all.

    Once all Emma’s bills have been paid the family will donate any remaining money to appropriate charities.

    Thank you.

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    • 22/02/2018 by Jody

      This is heartbreaking news. Thank you for the update and my love and best wishes to Matt and the children.

  • Since Christmas

      7 February 2018

    First, many thanks to all those who have contributed so generously towards Emma's treatment since the end of December when we set up this page.

    Emma had an enjoyable though tiring Christmas with family and then had a full course of radiation therapy to try to reduce her pain. She then began treatment with the immunotherapy drug, Keytruda, in January. The third dose of Keytruda will be this Friday and then we await a scan at the end of February to assess the effectiveness of this new drug.

    The family have sought a second opinion from the Royal Marsden Hospital in London and expect to hear from them soon. The hospital in Boston which is assessing Emma's genetic profile to see if any clinical trials or bespoke immunotherapy drugs may help, is also expected to report to Emma's team in Auckland shortly.

    We'll keep you posted and thanks again for your kind messages and support. Emma would not be having the chance of these unfunded treatments without your help.

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