Help find a cure for motor neurone disease - and keep hope alive.
Nationwide
Motor neurone disease is an awful diagnosis to receive. It means the nerve cells that control your muscles are dying, causing progressive weakness and eventual paralysis of all the muscles in your body. It's fatal and those diagnosed are told they are likely to live just 2-4 years. The diagnosis doesn't come with any hope - yet.
However, science is starting to understand the abnormal processes that cause MND. Many of the genes involved have been identified and our understanding of the disease is increasing dramatically. Medications will one day be developed that will slow or stop MND.
End MND New Zealand donates funds equally to:
- the Packard Centre for ALS Research at Johns Hopkins Medical School; and
- the ALS Therapeutic Development Institute.
These large research centres are comprised of over 100 scientists who are solely focused on finding treatments for motor neurone disease. These scientists collaborate with each other, and with many pharmaceutical, academic and biotech labs around the world. For more information see http://www.alscenter.org/als_science/research_vision.html and https://www.als.net/Support/Why-Support-ALS-Research.aspx.
My mother Tui McBeath had motor neurone disease. We are passionate about contributing to research that will further our understanding of this relentless disease and fund the eventual development of life-extending, and hopefully life-saving treatments.
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