End MND for Tui

$3,840 of $100,000 goal
Given by 46 generous donors in over a year

Help find a cure for motor neurone disease - and keep hope alive.

Nationwide

Motor neurone disease is an awful diagnosis to receive. It means the nerve cells that control your muscles are dying, causing progressive weakness and eventual paralysis of all the muscles in your body. It's fatal and those diagnosed are told they are likely to live just 2-4 years. The diagnosis doesn't come with any hope - yet.

However, science is starting to understand the abnormal processes that cause MND. Many of the genes involved have been identified and our understanding of the disease is increasing dramatically. Medications will one day be developed that will slow or stop MND.

End MND New Zealand donates funds equally to:

- the Packard Centre for ALS Research at Johns Hopkins Medical School; and

- the ALS Therapeutic Development Institute.

These large research centres are comprised of over 100 scientists who are solely focused on finding treatments for motor neurone disease. These scientists collaborate with each other, and with many pharmaceutical, academic and biotech labs around the world. For more information see http://www.alscenter.org/als_science/research_vision.html and https://www.als.net/Support/Why-Support-ALS-Research.aspx.

Annabel McAleer's involvement (page creator)

My mother Tui McBeath had motor neurone disease. We are passionate about contributing to research that will further our understanding of this relentless disease and fund the eventual development of life-extending, and hopefully life-saving treatments.

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Latest update

Annabel gets iced  16 August 2014

The #ALSicebucketchallenge arrives in New Zealand...

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Latest donations

Guest Donor
Guest Donor on 02 Dec 2015
Private
Steve Bulman
Steve Bulman on 02 Sep 2015
Can't believe I have not already done this - I think this donation may cover me doing an ice bucket challenge, but then again - i had better do that as well. My Aunty Tui is missed greatly by all that she touched from around the world. The research that is ongoing is starting to find some really interesting results - it needs to continue!!
$100
Guest Donor
Guest Donor on 10 May 2015
$70
MDS Law
MDS Law on 17 Apr 2015
Private
Suni Eckhoff
Suni Eckhoff on 11 Apr 2015
May this small donation help the research into Motor Neurone Disease from which Tui suffered and faced with such courage
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Who's involved?

Annabel McAleer's avatar
Created by, and paying to a verified bank account of, Annabel McAleer
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This campaign started on 17 Aug 2014 and ended on 31 Dec 2015.