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Ongoing stroke therapy funds needed for baby Jye!

$8,909 donated
Given by 77 generous donors in over a year

A page to raise funds for my child Jye who has had a significant stroke and will always need ongoing therapy

Napier, Hawke's Bay

Jye’s 2 in September, He’s had a significant MCA stroke on the left side of his brain which is the cause for his presentation of right-sided hemiparesis and his constant clench fist and stiff arm. Jye is now walking, he falls down a bit but what an amazing little boy he’s becoming and that’s big thanks to the therapy and donations so that we can seek the extra therapy. We are still only at the start of our journey but it is evident it will be a long one, the gap will grow as he gets older with his peers. We are always actively seeking extra treatment, therapy gadgets, and correct orthotic shoes for him to make the best recovery he can.

As his parent and a new graduate nurse, I have advocated for him early, been that squeaky wheel in the system, and am hoping that early intervention along with neuroplasticity of a baby's brain will see Jyes brain rebuild and rewire so he can have the best chance at a somewhat normal life with the hurdles that will arise for him in the future. We have had minimal support from the system thus far as it is so stretched and have decided to go private for extra therapy, this comes at a cost which is travel to Hamilton on a monthly basis, accommodation, and therapy alone is $750 for a 5-day block this will be ongoing through out his childhood and most likely into his teen years.

Thank you in advance for your time in reading my short story I had so much more to write but am limited, we sincerely thank you for your generosity to continually help Jye.

Alyse Hedley's involvement (page creator)

I am his mother and his advocate

Use of funds

Funds will be spent on Jye throughout his rehabilitation and recovery from private therapy sessions, to equipment and whatever else he may need as it arises, we are only at the tip of the iceberg at present with him only being 1 year of age.

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Latest update

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Therapy wins   1 January 2024

Jye has been doing regular Estim therapy sessions in the last quarter of 2023 and it has shown to be the best type of therapy for him this far and we will continue the venture, we’ve been able to purchase the machine that is used so we can even upkeep his progress at home. So thank you to all that have followed and donated for Jye it is honestly giving him the best start possible.

Happy new year to all and well wishes for 2024

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Latest donations

Saten
Saten on 04 Jul 2023
$5
Alyse Hedley

Many thanks for your donation, Jye has intensive therapy this week 😊

Alyse Hedley
Wendy
Wendy on 25 Feb 2023
Love to you lil Jye - working hard each day to try and walk ❤️❤️ you are a lil trouper, everyday you amaze us. Love Grandaz and Glammy 🥰❤️🙏👏
$100
Ash
Ash on 28 Jan 2023
$20
Alyse Hedley

Thanks so much for your donation for Jye boy 🥰

Alyse Hedley
Wendy
Wendy on 09 Oct 2022
Love to you lil Jye - your trying hard everyday 🥰 love Glammy and Grandaz 🥰
$100
Terri & Family
Terri & Family on 08 Oct 2022
Sending love and strength to you all
$50
Alyse Hedley

Thank you so much for your kind donation for Jye 💕

Alyse Hedley

Who's involved?

Alyse Hedley's avatar
Created by, and paying to a verified bank account of, Alyse Hedley on behalf of My baby Jye
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This campaign started on 30 Aug 2022 and ended on 31 Dec 2023.