Faith's Wish to Walk
Faith's Wish to Walk - Help Faith to have the life changing surgery that will give her a chance to walkAuckland
My name is Faith. I am a happy, friendly, cheeky beautiful and very determined little 4-year-old girl who loves to sing songs and say “Hi” to people.
I was born prematurely at 29 weeks weighing 1.345kg, due to birth complications I was immediately placed in the incubator and rushed off to the Special Care Unit, that became my first home for the next three and half months. On the third week, mummy and daddy were called into the kind paediatrician’s office. They were then told the bad news that turned their world upside down.
I have been diagnosed with something called Periventricular Leukomalcia (PVL), a form of brain injury that the brain cell died off due to unstable blood pressures at birth
As I grew older, I started to miss the key milestones as a baby then as a toddler. At two years old, I was diagnosed with Spastic Quadriplegic Cerebral Palsy. The Spastic Quadriplegic Cerebral Palsy causes stiffness, spasticity in my hands, arms and legs, making balancing, walking and sitting really difficult. Simple movements are a major challenge for me, my body is often in pain. Every night my sleep is disrupted, and I tired easily. Over time spasticity will cause my muscles to get tighter and tighter. Eventually tendons will shorten and I will begin to lose my mobility.
Through lots of tears, my strong mummy and daddy did not give up on me. With the grace and love of God, and huge support from family and friends, I started my therapy journey.
My daily life now revolves around therapy; Conductive Education, physiotherapy, intensive therapy, speech and language therapy, music sessions, hydrotherapy and acupuncture. I practice walking in my walker and or stand in my standing frame at every opportunity I get. I do physio exercises at home every day, even when the days are long and tiring. I continue to improve, but to achieve control over my movements and to progress to the next level, I need surgery to eliminate the spasticity which dominates my body.
My mummy and daddy did A LOT of research last year, we came across a life changing surgery known as “SDR”. (Selective Dorsal Rhizotomy) in St Louis Children's Hospital. This spinal surgery is performed on the lower part of the spinal cord by severing abnormal nerves to reduce the spasticity in the body. This surgery will allow me to gain the ability to be more independent, moving in and out of positions without spasticity and pain. I will have better control of my body, be more comfortable and in less pain. I will have a chance to have a better quality of life, a chance to walk, run, jump and play at eye level with my brother and my friends.
Because this surgery is not funded by the NZ health system, we are aiming to raise $150,000 dollars in next two years to cover the cost of SDR surgery, the post-operation rehabilitation, and 6 weeks of accommodation and flight to America. In addition, any surplus funds will go towards non-funded post-operation intensive therapy needed in NZ.
Please donate to help me and my family. Spread the word, like and share our page at https://www.facebook.com/Faiths-Wish-to-Walk-243960696506197/ . From the bottom of our heart, we are very grateful and appreciate for your help and donation. Thank you again for making my family’s dream comes true and helping to change my life!
God bless you and all your love ones.
Jessica Seo's involvement (page creator)
Mother of Faith Yu-Na Seo
Use of funds
The fund will contribute towards Faith's Selective Dorsal Rhizotomy surgery and post-operation rehabilitation, 6 weeks of accommodation and flight. Surplus fund will go towards non-funded intensive physiotherapy in NZ.
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This page was created on 14 Aug 2019 and closes on 14 Aug 2021.