Hi everyone to let you know I am reopening the page - actually I didn’t realise it had expired
The reason I’m reopening the page is for Im still on my Cancer journey and still need support which I truly appreciate thank you all so much for all your support.
Since starting this journey I have had around 50 rounds of chemo some of them the Unfunded drug Cetuximab this sadly has now stopped working so with talking to my Oncologist he said there was 2 more options of the unfunded drug plus after I talked to a surgeon in Auckland and him talking to his team there was an option of a proceedure called TACE which I have just had 10 days ago they put a catheter into the groin and travel up into the liver where they cut off blood to one of the arteries and release chemo beads into the tumour area this was extremely painful they get the pain team to set up a pump while they release beads and block off supply I am now waiting for a scan in 4-6 weeks to see where things are at
Since starting chemo I have had eye issues which have gotten worse it’s so bad that most of the time I can’t open my eyes I have Blepharospasm the only treatment available to me has been Botox around the eyes that was done by a private Nuerologist and cost $1540 and he also put me on some medication that is usually prescribed for Parkinson’s disease
I had to go private for an eye specialist and then he referred me to a Neurologist we tried through the hospital but they were taking months and months to even give me appointments
I need the Botox done every 3 months for it to help me to be able to open my eyes my Nuerologist told the hospital so I wouldn’t have to pay and told them I was functionally blind without the treatment but apparently I am only semi urgent/ routine in their eyes so have been waiting for months just to get an appointment. I have a 5 year old to look after! I will need this treatment every 3 months
at a cost of $1540
I also need funds to have ready for the next unfunded treatments and Private specialist Consult costs and any natural treatments to help with the chemo side effects etc
I would also love to be able to take some trips with the people most precious to me my kids as well 😊💜
Thanks again for all your support I truly appreciate it 😊💜