Cost updated
19 May 2026After receiving the official quote from the private Centre, we now have a much clearer understanding of the real cost of Ailien's treatment.
The original estimate we were given was based on the possibility of needing treatment every 3 weeks for up to 2 years, which initially made the projected costs extremely high.
The good news is that we only need to cover the first 8 doses of the treatment, because the remaining doses will be covered through a pharmaceutical support programme. This has reduced the estimated total cost over 2 years to approximately $150,000 NZD, rather than the much higher amount we originally feared.
This updated goal reflects ongoing treatment costs, specialist care, infusions, and the remaining out-of-pocket expenses not covered by the programme.
Thank you for every donation, share, message, and kind word. The support my son and I have received means more than I could ever explain.
Ailien