Get Hayley standing on her own 2 feet
We're embarking on a journey to the US with Hayley for leg surgery, a step towards her gaining the ability to stand & make life manageable.
Hamilton, Waikato
Meet Hayley, a remarkable girl living with Arthrogryposis, a condition that confines her to a wheelchair due to locked hips, knees, and ankles at a 90-degree angle. In New Zealand, we've struggled to find medical professionals willing to perform the necessary surgery.
Recently, we attended an Arthrogryposis conference in the United States, where we witnessed inspiring stories of children gaining their ability to walk through specialized surgery. We connected with doctors ready to help Hayley.
Now, we face an exciting yet challenging journey to the Shriners Hospital in Greenville Carolina for a 3-4 month treatment plan including leg and hip surgery and rehabilitation, costing around $90,000.
We understand these are tough times for everyone, but we're reaching out to our community for any support, no matter how small. Each donation brings us closer to transforming Hayley's life.
Hayley is a vibrant, determined girl. Walking would be a game-changer, as her limited strength in her arms and legs poses daily challenges. It would enable her to perform simple tasks like transferring from her wheelchair to the toilet, bed, or car.
Our goal is to make these tasks more accessible for Hayley, and any additional progress would be a tremendous bonus. Your support can help turn this dream into reality.
Join us in Hayley's journey to walk again. Your generosity and kindness mean the world to us. Thank you for considering being a part of this transformative journey.
Use of funds
The funds will be allocated towards cover the cost of the surgery, if for any unforeseen reason we do not proceed and go to America, the funds will be given to True Colours Children's Health Trust in Hamilton
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Latest update
Hayley Friends and Followers 27 October 2025
Kia Ora
It's been a hot minute since we last did an update on the wonderful, clever, and mobile Hayley Light.
Unfortunately, Hayley's Facebook page was taken down by Meta some months ago. Anna is fighting to get all that glorious content back, but the progress is slow.
Since the last update, Hayley has continued to go from strength to strength. She is a ferocious competitor in wheelchair soccer, she sings in a choir, recently WALKED three laps of the field at school for the colour run, and is swimming like a champ. The freedom chair (lightweight transportable electric wheelchair) that the Lions in North Carolina sent her home with has been a true gift, which has allowed Hayley to explore the world in her own time and at her own pace.
Her wicked sense of humour and her quick brain keep everyone on their toes and smiling.
Thank you once again for the gift of freedom you gave Hayley last year. This year has been remarkable because it.
Aroha Mai
Latest donations
Sue - thank you so much for your donation to support Hayley. We are very grateful.
Thank you Vicky and Stu. We are grateful for your support.
Thank you Molly! Very grateful for this donation on behalf of Harry and Eddie :-)
Hi Paula - thank you so much for your support and love. We are very grateful.
Rishaan and Ryka - you guys are super star donators. Thank you so much.
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