Get Hayley standing on her own 2 feet
We're embarking on a journey to the US with Hayley for leg surgery, a step towards her gaining the ability to stand & make life manageable.
Hamilton, Waikato
Meet Hayley, a remarkable girl living with Arthrogryposis, a condition that confines her to a wheelchair due to locked hips, knees, and ankles at a 90-degree angle. In New Zealand, we've struggled to find medical professionals willing to perform the necessary surgery.
Recently, we attended an Arthrogryposis conference in the United States, where we witnessed inspiring stories of children gaining their ability to walk through specialized surgery. We connected with doctors ready to help Hayley.
Now, we face an exciting yet challenging journey to the Shriners Hospital in Greenville Carolina for a 3-4 month treatment plan including leg and hip surgery and rehabilitation, costing around $90,000.
We understand these are tough times for everyone, but we're reaching out to our community for any support, no matter how small. Each donation brings us closer to transforming Hayley's life.
Hayley is a vibrant, determined girl. Walking would be a game-changer, as her limited strength in her arms and legs poses daily challenges. It would enable her to perform simple tasks like transferring from her wheelchair to the toilet, bed, or car.
Our goal is to make these tasks more accessible for Hayley, and any additional progress would be a tremendous bonus. Your support can help turn this dream into reality.
Join us in Hayley's journey to walk again. Your generosity and kindness mean the world to us. Thank you for considering being a part of this transformative journey.
Use of funds
The funds will be allocated towards cover the cost of the surgery, if for any unforeseen reason we do not proceed and go to America, the funds will be given to True Colours Children's Health Trust in Hamilton
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Latest update
Update On Hayley's Progress 11 September 2024
Morena Hayley Friends and Supporters
Hayley and Family arrived home on 2 September and are settling back into school and life in NZ.
I have attached a photo of Hayley taking her first steps in New Zealand, and I hope that you all feel as proud as I do of the contribution, we collectively made to support Anna's choice of a better life for Hayley than what was offered in New Zealand.
As I have mentioned in other posts the outcome of this surgery is beyond what we expected. I met with Anna on the weekend, and she told me that as a family they could not have asked for a better surgeon or better care than what they received at Shriners. We thank them from the bottom of our hearts for the aroha they showed the entire family during Hayley's four-month admission.
Hayley and Lucy left a huge mark on the Greenville community. The Lions wrapped themselves around the family and provided incredible support for them all. Before the family left, they thanked Anna for having the opportunity to support a small girl from New Zealand. After COVID the Lions felt they had kind of lost their way. Hayley's cause gave them a purpose and they hope to continue this by supporting other families at Shriners.
Hayley and Lucy also captured the hearts of the team at the YMCA where the girls did swimming lessons. Check out Hayley's Facebook page to see a piece by the local news station that aired just as they left.
I will continue with updates over the coming months.
Thank you all
Jo
Latest donations
Sue - thank you so much for your donation to support Hayley. We are very grateful.
Thank you Vicky and Stu. We are grateful for your support.
Thank you Molly! Very grateful for this donation on behalf of Harry and Eddie :-)
Hi Paula - thank you so much for your support and love. We are very grateful.
Rishaan and Ryka - you guys are super star donators. Thank you so much.
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