Update
12 November 2023Hi all, so our update. The new medication continues to work and we continue to get better results in nick in many ways. He is out of bed far more and avke to spend more and more time with the kids, doing v things outside the house. Just recently he was able to attend an o er night Camp with Jack, which was amazing for the both of them. Nick was the cook and loved every bit of helping and spending time with Jack's and his friends. We still continue to raise money for his scripts. We are almost at the end, the end lag is the hardest when you've given everything you had for the race it gets tiring toward the end but definitely worth it in every way. Pic of chef nick at camp. Thank you all for everything you've done for us and continue to do for us. We love and appreciate you all. 🖤