Meet our little heart warrior, Titaha Newman
27 September 2019Hi everyone. Sorry for taking so long to update this page. Titaha was born on 10/09/19 and we literally haven't had 5 mins to sit down since. At 2 days old he had an Atrial Septostomy which is a surgical procedure to open up a hole between the 2 upper chambers of the heart. He was in the neonatal ICU ward until yesterday, when he was moved to the children's hear ward 23B in Starship Hospital. We are now waiting to see how his heart grows over the next week or so to see weather he needs a band put into his pulmonary artery to reduce the blood flow to his lungs, but at the moment his lungs are clear of fluid and if his numbers remain stable, we might even be able to take him home to our rental house nearby. Due to the measles outbreak, most of the hospital has been on lock down to all visitors, so he still hasn't been able to meet his brother and sisters yet. In a few months time he will need to get the Glenn procedure, where the Superior Venacava (vein returning from the top half of his body) is joined directly to his lungs. At the moment, he is saturating between around 88% to 94%, which is great oxygenation for our little heart warrior and we are all so very proud of him. His heart rate is up a little as to be expected and he is putting a lot of effort into his breathing, so we are far from being out of the woods yet. Our home in Northland was robbed last week and our house was completely trashed, so it will now take a lot of extra work before we can bring our baby home to the place we love the most. We have both been through a lot in the past, but this has been the hardest time of our lives. We remain positive and are taking things one day at a time. Thanks again to all who have donated and shared our fundraiser. It has been a lifesaver.
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What a little cutie such a brave wee boy Kia kaha
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Titaha is gorgeous! Keep fighting little guy. So sad to hear that your house was robbed.