His condition:
18 May 2020
Severe Hypoplastic Left Heart Syndrome (HLHS), Double Outlet Right Ventricle (DORV), Transposition of the Great Arteries/Vessels (TGA) with Right sided Aortic Arch, Single coronary artery origin (SCA), 1 X small Subaortic Ventricular Septal Defect (VSD) and 2 X small Atrial Septal Defects (ASD), Subpulmonary stenosis, Severe Left Ventricular Hypertrophy, Mild to moderate Right Ventricular Hypertrophy, Severe Mitral Stenosis with mild to moderate Mitral regurgitation, Mild to moderate Tricuspbid Regurgitation, Enlargement of the Single Atrium. Subpulmonary myocardial hypertrophy, Mild Aortic Valve Stenosis, Mild Main Pulmonary Trunk Stenosis, Dilated Kidneys, 2 X extra ribs and T5 butterfly Vertebrae, Reoccurring Chylothrax.
Titaha has had problems with a (plural effusion) leak of chyle fluid from his right lung, so he has needed another chest drain put in which is very painful for him and makes his daily cares like baths and cuddles a lot more difficult. It's likely that it will eventually stop leaking once he gets used to his new circulatory system, but he's been penciled in for another cardiac catheter next week to check the pressures in his heart and see if there's anything we can do to stop his lung leaking the fluid. Unfortunately this means another anesthetic which in itself is very scary.
Thanks to everyone for your wonderful support.