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🩷 Hannah-Rose 🩷

  • Update!!

      29 December 2025
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    Hey everyone, an update on Hannah-Rose progress she has been such a trooper throughout her short journey 💙

    She is now in boots and bars after 19 casts, and has been so strong we are so very proud of her ❤️

    Although America hasn't gone to plan we have received some great care for her in dunedin we have an amazing orthopedic surgeon who has been incredible with Hannah-Rose and our care involving us in everything which has been amazing

    If you would like to keep up with more in depth information about Hannah-Rose please join her website: https://www.facebook.com/share/17w8wsmC8R/

    Thank you so much to every single person that has been apart of Hannah-Roses journey we appreciate you all so much 🥰🙌

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  • Thankyou everyone

      22 September 2025
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    We would just like to take this opportunity to thank every single amazing supportive kind person who has been apart of this journey so far with Hannah-Rose.

    This has been such a heart breaking time for us with more downs then ups latley so it has been hard to keep up with the page here and there.

    Hannah-Rose is just such an amazing inspiring wee button shes such a wee fighter and not alot fazes her we are so proud and absolutely blessed to be her parents ❤️

    We Thankyou all so much for the beautiful words and generous donations please be sure to Google Hannah-Rose arthrogryposis in the very near future to follow learn and grow with her progress 🫶 Thankyou all so very much for everything we appreciate you all so much ❤️💙 🩷🌹

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  • Legs,feet update

      13 September 2025
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    Due to swelling and slipping of the casts we have decided to take them off for a rest. Somthing we absolutely are torn about but feel we have no option to give Hannah-Roses legs a rest,her poor wee legs are so swollen and dont want to cause any more harm by having them on just now, once the swelling has gone down the correct manipulation of her feet will be able to be achieved slowly, definitely going with my gut on everything,including this decision and we feel we have to at this stage. They wanted to do tenotomy which is a snip of the arcilies tendon which she is absolutely not ready for.. any surgeries at this stage will cause scar tissue n make things alot harder plus unnecessary surgeries is not what we want if we can avoid we will. We are her advocates so sometimes we need to make sure we are heard purely for the best for our baby girl.

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    • 15/09/2025 by Libby

      Sometimes the cast slippage is because the angle of the knee when a cast go on should be between 90 and 110 degrees , especially for complex club feet, just something to ponder on, all the very best, love hearing all her updates, it's a journey but she will get there x

  • Latest update 💖

      13 September 2025
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    Update on Hannah-Rose 🩷⚘️

    Sorry team due to Hannah-Rose been very sick the past couple weeks, we have been in hospital fighting a virus 😢 so sad felt very helpless, i wouldn't wish this rsv type sickness on anyone, its definitely going around hope all the other bubbies get better soon xx

    Safe to say she is on the mend now and back home.

    She is such a strong fighter and deals with everything thrown at her like such a champ shes so brave 💗

    But am still currently sorting somthing amazing behind the scenes and cant wait to announce whats in store for our girls future and been able to help others along the way, is somthing we are so passionate about 🫶✨️

    Hannah-Roses feet are explained as complex and are a bit of a challenge at this time so its pretty upsetting atm she has had 11 casts put on her legs/feet since she was 1 week old, with some progress but not as much I hoped 🥺

    Main problem we are having at the moment is the casts slipping and one foot is alot worse then the other, the fear is gut wrenching at this time but we are still holding hope she can make some more progress in the next few months here 🙏

    Have added a video to show where we are at with our wee button its just pretty heart warming to see her going hard with her legs after her first diagnosis in the womb we were told "she would never move her legs" but look at her go!!

    Thankyou so much everyone for your beautiful thoughts and prayers while we Navigate through this journey for our girl ❤️

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  • Hannah-Rose

      29 August 2025
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    Hey everyone an update on Hannah-Roses progress with her condition so far 🩷🌹

    We have met some incredible people so far on this journey and thank everyone so much for supporting us through this especially the ones who have been personally involved in her care here in dunedidn.

    We have made some great progress and have a current 10 year medical care plan put in place by a special someone who is familiar with her condition which is incredible ✨️

    At the moment she is having regular castings and in the progress of getting hand splints made designed to fit and treat her thumbs which are also effected by her condition,slow process but any progress is a positive at this point 😁

    Thankyou so much everyone for your amazing support we truly appreciate everyone on this journey ❤️

      2 comments  |  Login to leave a comment

    • 15/09/2025 by Libby

      Hi there, have been following you and your little girl, sometimes when the casts slip , it is because there should be more of an angle 90 to 110 degrees at the knee when casting, just keep that mind and all the best xx

    • 16/09/2025 by Renee Thompson

      Hey Libby thankyou for your comment and been supportive for our jouney!! Yes I understand that theye do slip however, there has been little to no correction on her cavus and forefoot which makes the slipping cause her feet to be even more complex and potentially doing more harm then,would think after 11 casts there would be some progress on her cavus 🥺

  • Thankyou 💙🫶

      25 August 2025

    We just want to thank every one of your for supporting,caring and sharing love with us on this journey so far,we appreciate every single one of you and truly thankyou for been so kind and caring, the love and support yous have shown us and Hannah-Rose has been so heart warming.

    We have been so busy sorting everything here in dunedin and have not forgotten about you beautiful souls that have shown love,donated or said some beautiful kind words through this tough time, we have somthing amazing going on behind the scenes and can't wait to share with you all,Hannah-Rose is truly the luckiest, most special wee girl that has touched alot of people's lives so far and will continue to do so, thankyou so much to everyone here we are so blessed and greatful to have you on this journey ❤️

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    • 26/08/2025 by Sharyn

      Great to hear things are positive for you and your precious daughter

  • Unexpected Change in Circumstances

      14 August 2025

    It is with great heart break we regret to inform everyone that America will not be going ahead, due to an even bigger risk of not being able to access medical insurance if anything were to happen over there getting Hannah-Rose treatment.

    Wish we thought about this sooner, with everything going on with our girl we truly wanted the very best outcome for her n best care possible, been so wrapped up in researching the best care available we never stopped to think what if something went wrong, due to Hannah-Rose having an underlying condition she is not eligible for health insurance putting her at great risk if anything were to happen she wouldn't be able to get treatment or it would come at a great cost.

    We are absolutely devastated for everyone that has contributed to this page and feel we have let everyone down, we are truly so sorry for this massive change.

    Going forward we have had an amazing person step in to help Hannah-Rose get the best care possible here in NZ. She has a long road ahead and we just have to have faith and trust we are doing the right things by her every step of the way with the support here in NZ.

    We would now like to repurpose the funds to support our family here in New Zealand. Hannah-Rose’s surgery will be covered locally, and we do have access to some support for ongoing costs like travel and accommodation. However, this won’t cover everything. Her treatment journey is projected to span the next 10 years, and the long-term impact, including taking time off work to attend appointments, manage recovery, and provide daily care, will place significant financial pressure on our family.

    Repurposing these funds would allow us to focus on Hannah-Rose’s wellbeing without the added stress of financial strain. It would help cover gaps in support, unexpected costs, and ensure we can be present for her every step of the way.

    If you would prefer a refund, please contact the Helpdesk at helpdesk@givealittle.co.nz within 14 days.

    We are so grateful for your compassion, generosity, and understanding. Your support continues to mean the world to us.

    Thank you all so much 💔💙

      3 comments  |  Login to leave a comment

    • 15/08/2025 by Doug

      My partner Raewyn and I do not mind at all if our donated funds are repurposed in helping Hannah-Rose. All we want for your beautiful little girl is that

      she can be helped, regardless of where that

      happens. With our very best wishes, Doug Leggett.

    • 15/08/2025 by Sharyn

      I’m glad for my contribution to go to your future costs. Be strong and go well.

      Sharyn

    • 15/08/2025 by Alison

      I hope you can use the funds towards finding the best specialist advice here in NZ and we are all wishing you the best success in finding the right treatment for Hannah-Rose. Keep strong for your gorgeous girl ❤️❤️❤️

  • Hannah-Roses condition

      8 August 2025

    Hannah-Rose was born with Arthrogryposis/Amyoplasia is a muscular deformity that effects both upper and lower limbs, In Hannah-Roses case shse is effected in her lowers,mainly her legs an feet with the double clubfeet,hyper extended legs, she is also effected in her thumbs which she keeps tightly rolled in like a fist. The team here have managed to get her knees to bend which has been great,to allow for castings to happen,unfortunately her feet have had little progress and have no been corrected effectively. We are keeping Hannah-Rose is a rhino brace to keep her hips aligned to support her hip dysplasia.

    We are wanting to do the ponseti method in America which is where the method was created by Dr ponsetti before he passed,it is a method that allows the child to be relaxed and comfortable while they manipulate the feet then cast,manipulate again cast and so on to get the best results needed to be achieved, unfortunately for Hannah-Rose this has not happend and she has been left in pain and inconsolable and very sensitive to the touch for her feet after these appts. Which is not the ponsetti method they should not be in pain like that,uncomfortable for the first 12 hours yes but pain no.

    We are trying to achieve the best method to potentially save unnecessary surgeries in the future and for her to get the best care possible, as soon as possible while she is young.

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  • Unknown

      8 August 2025

    Wether you have shared,donated or even read this page we truly appreciate you so much 💙

    You are apart of journey with Hannah-Rose 🩷🌹

    You guys are our supporters 🫶

    We are going to be 110 percent honest and transparent with everyone all the way through.

    We will post as many updates as we can to keep everyone in the loop as to how Hannah-Rose is doing and what we are upto regarding our plans. We know how crucial openness and transparency is especially in a time that is unknown or unnsettling.

    We aim to be going in 2-3 months or asap,we are still figuring out how much this is going to cost.

    We are not ones to ask for hand outs and this is very hard for us to do, so while we do have this setup ticking away in the back ground please know we are doing everything in our power to raise funds which we will also keep you guys updated on.

    We are just a family who enjoy keeping to ourselves and being in each other's company so this kind of thing is very foreign to us to share personal lives online,so please bare with us as we

    Navigate our way through this to keep everyone involved and informed as much as we can.

    This is solely our choice to go to America as we have done much research since finding out her diagnosis,finding out very recently that america is a great option and know in our hearts that is our best option, wish we knew this route sooner. This is our choice,so please dont feel obliged to donate at all, just been here and liking an update or sharing is absolutely enough 💙

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    • 10/08/2025 by Rochelle

      I wish little Hannah rose the absolute best possible treatment in America , sending lots of love and light to you all bless you Namaste