🩷 Hannah-Rose 🩷

Our precious strong girl Hannah-Rose was diagnosed at 24 weeks utero,with a rare condition Arthrogryposis.Amyoplasia hyper extended legs hip dysplasia and double clubfeet. Despite docs saying she would never move her legs and we should abort,was at that momenet i felt her first proper kick in my stomach and she come out kicking. She has given us so much hope at a time we were completely hopeless.

The doctors here so far have been supportive but they are out of there depth,with little to no experience in her condition. She has had the wrong casts on her legs for 7 weeks and at this point her casts are now off so we can start again. We have been in touch with a specialist in america who is confident and prepared to help her,fear that is our only option to get the best possible care and knowledge we need for her to be given the best chance at this.

However, after further consideration and changes in circumstances, the U.S. treatment plan is no longer going ahead. Instead, we’re focusing on accessing the best possible care here in New Zealand, and giving Hannah-Rose every chance to thrive.

We’ve updated the use of funds to reflect this shift. Donations will now go towards:

-Travel and accommodation for treatment in New Zealand

-Daily caregiving support and recovery-related costs

-Household bills and living expenses

-Unexpected medical or support needs over the 10-year treatment journey

We’re a semi-young family with two under five at home, plus Hannah-Rose. It’s been a rough start, but we have hope, and the support of our whānau, to get through. We’re truly gutted to have to set this page up, and would have loved to fund her care ourselves. But time is no longer on our side, and every cent is deeply appreciated.

Thank you from the bottom of our hearts 🫶