Fundraising for Harper to have his own pool.
Paraparaumu, Wellington
In October 2016, my nephew Harper Ahern was 4 years old when he was unexpectedly diagnosed with Duchenne Muscular Dystrophy (DMD).
DMD is a severe neuromuscular disorder in which muscles progressively waste away and mobility loss is certain. Whilst there is heaps of research and trials in place, there is currently no cure for DMD and primary treatment consists of steroids and physical therapy to try and prolong the onset of the disease.
How quickly and how severe Harper’s condition deteriorates, we don’t yet know. Harper has lost his mobility and requires an electric wheelchair full-time. His dreams and needs are similar to other boys his age. He loves cooking, waterslides, playing at the beach, being part of a soccer team, bush walks and getting up to mischief! Harper feels free when he is in the water and it can help his condition by providing mild resistance for low-grade muscle work, respiratory exercise to maintain or increase capacity and breath control and provide a great space to socialise and interact with others. It is my dream for Harper to have his own pool to help him feel free, help his health and so he can create precious memories.
My darling Nephew.
Swimming poor for Harper
14/02/2022 14 February 2022
Harper’s family would like to acknowledge and thank everyone for your donations provided towards Harper’s Dream Pool. They have read every message & donation, and are overwhelmed at the response. Harper and the family are extremely grateful and appreciative of the support. The ideal pool for Harper is a heated, inground pool with a hoist nearby. This will allow Harper to swim year round, and play with his sister and friends. Swimming is the only physical activity Harper is able to easily do now, and is so important for his mental and physical health. The cost for inground pools is significant, and all funds raised are going towards this pool. Planning for the pool has begun, and there has been a huge amount of people indicating they are able to help with labour and materials - which is amazing! Harper and his Aunty Emz were very close, and she is missed dearly by Harper and the whole family. We are hoping soon to have a better idea of pool timeline and costs, and are so looking forward to fulfilling Aunty Emz’s last wish and to leave this legacy in her name. Thank you all so much for your support.
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