LIFE SAVING SURGERY REQUIRED, "URGENT"

on 8 Apr 2024

June asks

Hi Lynn,

I note above that Professor Sandman found May-Thurner syndrome , the connective tissue syndrome. And also one renal vein compression. Is this perhaps good news as you mentioned more, I believe? Just hoping things go easier for her during surgery.

Lynn

Hi June, Please don't take this as gospel as there is just so much going on for our Trinity at present and symptoms etc seem to be changing daily. At this point in time Professor Sandmann has confirmed 4 (maybe 5) compressions from the Scans that Anna sent from here. Anna was also informed of the high possibility of more being detected once she and Trinity get to Germany and have the imaging done over there as per Prof Sandmanns requirements.

on 11 Dec 2023

Michael asks

What have the German doctor said about surgery in Germany? like when will it happen etc

Lynn

Hello Michael, thank you for your interest.

Proffessor Sandmann has done a preliminary consult and diagnosis from scans and tests that we had sent to him. From these tests alone he has diagnosed Trinity with scoliosis, May-Thurner syndrome, medium arcuate ligamentum syndrome and left renal vein compression.

A Surgery date has NOT been set yet due to the fact that we need first off to have the funds necessary to get to Germany and for cost of surgery. If we can not raise the funds necessary then it will not be an option for us 😢.

on 27 Oct 2023

Michael asks

Kia Ora,

What airline are you flying with?

Have you asked them for help? Sometimes they will give free upgrades or flights when approached. I believe some airlines allow people to transfer air miles, check with the airline. If they do then you can ask people to donate air miles. Also post-covid a lot of people have credit with airlines that may be transferable.

Kia kaha.

Kind regards,

Michael

Lynn

Hello Michael,

Thank you for your enquiry and suggestions. With regard to Airline, we have not given that any thought at present as we are still a long way off $ target to be able to confirm surgery travel. Much as we would love to believe that we could be looking at surgery within in the next month or so the reality is we just do not know, and we do not really want to put ourselves under any more pressure than what we are currently dealing with. Once we get a little closer to attaining our goal we will relook at your suggestions. Thank you.