LIFE SAVING SURGERY REQUIRED, "URGENT"
"LIFE SAVING SURGERY" only available in Germany.
Napier, Hawke's Bay
Trinity is just 18yrs old, & needs URGENT life saving surgery. She has a connective tissue disorder that affects the collagen that runs through her entire body creating havoc. She has been confirmed with 4 rare Abdominal Vascular Compressions, affecting the blood flow to her organs & preventing her being able to hold food down & absorb nutrition. Treatment is not available in N.Z.
$180,000 raised means Trinity will receive the life saving surgery at the Clinic Bel Etage in Düsseldorf with leading Vascular Surgeon Prof Sandmann & his Specialised team of Clinicians who have confirmed via scans & medical reports submitted, the urgency for treatment.
Trins life is one of constant pain, fatigue, nausea, blackouts, weakness, weight loss & malnutrition, all due to the inability to eat or drink without vomiting, pain & distress.
Trin is an avid equestrian, loves deeply & is loved by all that meet her. She is kind, passionate & lives for her horses. She dreams of life free of pain, the ability to eat, a life where she can dress without having to try & hide tubes hanging from her body, a life of quality.
The family have fought long & hard for 18 years within N.Z’s health system, however feel very let down as there is no longer support here, the only option is to get Trin overseas for the complex surgery required.The family is very grateful for the public’s help to raise the $180k to save Trinity's life.
https://www.facebook.com/profile.php?id=61551410426812&mibextid=ZbWKwL
Lynn Hankey's involvement (page creator)
Grandparent
Use of funds
Initially, Costs to have diagnostic tests and medical care done Privately ( N.Z, DHB's will NOT do these) plus International travel costs to Germany, for Lifesaving Vascular Compression surgery and post Op care. If, for any reason, we don't get to Germany, then we will post a page update with further information as well as details for people to contact us should they wish for a refund or transfer. Givealittle will not be involved in any refund process.
Other page links
Latest update
A Synopsis "Trinity's story" refer "A Compressed Angel" on facebook 2 May 2024
HOW ARE YOU? A question of caring, yet 1 that fills me with dread.
I want to answer, I am well. I want to be honest, I don't want to make the person asking uncomfortable by speaking the truth. Maybe 1 day I will be comfortable speaking about my health issues, but I am not there yet.
My health is not who I am. It is what is happening to me. I struggle with the impacts of having rare health conditions that are not acknowledged by our health System & being told, what I am experiencing is in my head.
I am a foodie, grateful for the fact that most days I still get some hunger signals & desire to eat, however It doesn't matter what or how much I eat, the results are always the same.
My life is like living with never ending Gastroenteritis. I can't stay hydrated or keep down food. I spend my days battling dizziness & trying not to faint.
I long for a day that I can stand without causing my heart to have a total freak out & my vision to completely disappear.
I dream of how life would be without the constant tremors in my hands & body that make simple tasks so difficult. To go for a walk without setting off gut & pelvis pain & having my vision blur.
I know, surgery for the Compressions is not a magic cure, but it CAN give me a chance to some quality of life & not just a slow painful death from malnutrition.
For me, it is a LIFELINE. I hate feeling like a burden & I hurt seeing the stress on Mum, Nanna & Gada as they try to raise awareness & funds for myself & others.
Trinity 💞
Latest donations
Jonty, Thank you so very much for your incredibly generous donation & support. 💐 We cannot express strongly enough just how grateful we are...THANK YOU💗🧡 To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel". We would also be most grateful if you shared her page with your friends and contacts.
Lauren, Thank you so very much for your generous donation & support. 💐 We cannot express strongly enough just how grateful we are...THANK YOU💗🧡 To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
Dave & Michelle, Thank you so very much for your incredibly generous donation & ongoing support. 💐 We cannot express strongly enough just how grateful we are...THANK YOU💗🧡 To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
Isabella, Thank you so very much for your generous donation & kind words of support. 💐 We cannot express strongly enough just how grateful we are...THANK YOU💗🧡 To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
Kaye, Thank you so very much for your generous donation & support. 💐 We cannot express strongly enough just how grateful we are...THANK YOU💗🧡 To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
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