Medical Costs & LIFE SAVING SURGERY REQUIRED, "URGENT"
"LIFE SAVING SURGERY" only available in Germany.
Napier, Hawke's Bay
Trinity is just 19yrs old and needs URGENT lifesaving surgery. She has a connective tissue disorder that affects the collagen that runs through her body creating havoc + She has been confirmed with AVCs, Abdominal Vascular Compressions, which affects the blood flow to her organs & prevents her being able to hold food down & absorb nutrition. These Compressions are threatening her life if left untreated. Surgery is not available in N.Z.
$180,000 raised means Trinity can receive the lifesaving surgery at the Clinic Bel Etage in Düsseldorf with leading Vascular Surgeon Prof Sandmann & his Specialised team of Clinicians who have confirmed the urgency for treatment.
Trins life is one of constant pain, fatigue, nausea, blackouts, weakness, weight loss & malnutrition, all due to the inability to eat or drink without vomiting, pain & distress.
Trin is an avid equestrian, loves deeply & is loved by all that meet her. She is kind, passionate & lives for her horses. She dreams of life free of pain, the ability to eat, a life where she can dress without having to try & hide tubes hanging from her body, a life of quality.
The family have fought long & hard for 18 years within N.Z’s health system, however feel very let down as there is no longer support here, the only option is to get Trin overseas for the complex surgery required.The family is very grateful for the public’s help to raise the $180k to save Trinity's life.
https://www.facebook.com/profile.php?id=61551410426812&mibextid=ZbWKwL
Lynn Hankey's involvement (page creator)
Grandparent
Use of funds
Initially, Costs to have diagnostic tests and medical care done Privately ( N.Z, DHB's will NOT do these) plus International travel costs to Germany, for Lifesaving Vascular Compression surgery and post Op care. If, for any reason, we don't get to Germany, then we will post a page update with further information as well as details for people to contact us should they wish for a refund or transfer. Givealittle will not be involved in any refund process.
Other page links
Latest update
**FINALLY, We Have Answers** 7 August 2026
After 21 years of searching for answers, countless appointments, and an exhausting journey to have Trinity's symptoms understood, we have finally received a diagnosis.
This was only possible through the unwavering dedication of Trinity's incredible healthcare team and the results of her full genome genetic testing. Trinity has been diagnosed with an exceptionally rare genetic condition, with only an estimated 20–30 known cases worldwide. While having a diagnosis brings the validation we have long hoped for, there is, sadly, no cure.
Our focus is no longer on searching for answers, but on giving Trinity the very best quality of life possible.
We are also grateful to share that Trinity's ongoing care has now been accepted by our local DHB. Because of this, we will no longer be seeking financial assistance through Givealittle.
To everyone who donated, shared our story, sent messages of support, or simply kept Trinity in your thoughts—thank you. Your kindness, generosity, and compassion carried our family through the hardest years of our lives. You gave us hope when we needed it most, and we will never forget your support.
While this chapter closes, Trinity's journey continues. We hope that sharing her story has helped raise awareness of ultra-rare genetic conditions and the challenges families face in finding answers.
From the bottom of our hearts, thank you for believing in Trinity and walking this journey with us. We will be forever grateful.
Latest donations
Guest Donor, Thank you so very much for your very generous donation 💕. We cannot express strongly enough just how much this means to us at this point in time, THANK YOU. 🥰💝To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts. https://www.facebook.com/share/1A7BB3TguR
OMG Niamh, Thank you so very much for your incredible donation 💕. We cannot express strongly enough just how much this means to us at this point in time, THANK YOU. 🥰💝To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts. https://www.facebook.com/share/1A7BB3TguR
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