HOW ARE YOU? A question of caring, yet 1 that fills me with dread.
I want to answer, I am well. I want to be honest, I don't want to make the person asking uncomfortable by speaking the truth. Maybe 1 day I will be comfortable speaking about my health issues, but I am not there yet.
My health is not who I am. It is what is happening to me. I struggle with the impacts of having rare health conditions that are not acknowledged by our health System & being told, what I am experiencing is in my head.
I am a foodie, grateful for the fact that most days I still get some hunger signals & desire to eat, however It doesn't matter what or how much I eat, the results are always the same.
My life is like living with never ending Gastroenteritis. I can't stay hydrated or keep down food. I spend my days battling dizziness & trying not to faint.
I long for a day that I can stand without causing my heart to have a total freak out & my vision to completely disappear.
I dream of how life would be without the constant tremors in my hands & body that make simple tasks so difficult. To go for a walk without setting off gut & pelvis pain & having my vision blur.
I know, surgery for the Compressions is not a magic cure, but it CAN give me a chance to some quality of life & not just a slow painful death from malnutrition.
For me, it is a LIFELINE. I hate feeling like a burden & I hurt seeing the stress on Mum, Nanna & Gada as they try to raise awareness & funds for myself & others.
Trinity 💞