💙 A Difficult Ask, But A Necessary One 💙
1 April 2025
It’s not easy to ask for financial help—it’s humbling and uncomfortable, but through no fault of our own, this is where we find ourselves at, like so many others facing rare medical conditions.
We always believed that if something happened to our health, or the health of our loved ones, then the system we contributed to would be there, but now when it matters most, we’re being told there’s no funding for Trinity’s complex medical needs, all because of one misinformed comment in her medical records. It’s a terrifying & deeply concerning reality.
Right now, Trinity’s essential medical costs are around $1,200 per week. Full details are here: https://www.facebook.com/share/1EEDE44uDD/
On top of that, we’re covering specialist consults, genetic DNA testing, cardiology, vascular, gastro, rheumatology, and critical surgeries—including one to re-establish her central line, her literal lifeline. These are not optional; they are necessary to find a diagnosis and treatment plan.
Since July 2024, we’ve spent over $20,000 out of pocket. We’re working as much as we can, but we’ve reached a point where we can’t do this alone—not until her DHB takes responsibility for her care.
💙 If you can help in any way—donating, sharing, or just sending your love and support—it truly means the world to us.
We are beyond grateful for every single person who has stood by us. Thank you.
