"The Rollercoaster ride continues"
9 May 2026
A quick update on where things are at for Trinity.
Unfortunately, we’ve hit another major setback. Her PEJ replacement has been delayed after her last tube kinked and shifted out of position. Attempts to reposition it were unsuccessful due to a suspected narrowing, with radiology confirming that her gut is becoming increasingly complex to manage.
This means more investigations, more waiting, and more time before we can even attempt enteral feeding again.
For Trinity, this has been incredibly hard — physically and emotionally. She is currently without effective pain control, exhausted from the constant setbacks, and stuck in limbo waiting for answers while her body continues to struggle.
In the meantime, we are still carrying the significant ongoing costs of private nutritional support and the specialist supplies needed to keep her stable.
The one positive is that we’re starting to feel some real hope with the new complex care team at the hospital. Trust is slowly being built, and for the first time in a long while it feels like we may finally have people willing to work alongside us toward solutions.
Thank you to everyone who continues to stand with Trinity, donate, share, and support her journey. Your kindness is helping carry us through one of the hardest chapters yet.
Photo supplied shows "part" of Trinity's latest medical supply order, (approx $16k) that enables us to continue providing Home Care.
