Help baby Declan's long journey ahead

Declan’s mum here I’m just wanting to update each and every one of you who have been following along Declan’s journey with us.

Declan’s recent MRI showed that the part they were worried about on his brain stem is no longer a concern this is a huge relief to us and meant he didn’t need to have the aggressive chemotherapy that was planned, although the MRI showed residue where the brain tumour was which they are unsure about to wether it is scar tissue or tumour. If this is tumour then they will need to reopen and go back in to remove it.

Fingers crossed it’s just scar tissue as poor Declan needs a break and to be able to enjoy being a baby and doing everything he should be doing 😊

Today Declan had minor surgery back at starship to have his Line taken out (PICC line) this is great as the little man keeps trying to pull it out so atleast now he can enjoy life and have his first swim with his older siblings. Unfortunately because of the chemo he had last November he’s had to re do all his imms so had his 3 month ones also today, this poor little boy has definitely had a rough start but still remains to be the happiest bravest boy and blows our minds every single day. After spending 6 days in Palmerston North hospital after returning home last time from starship with a nasty gastro bug we can finally have a break from hospitals. The Team at starship are so happy with how Declan is doing and how good his scar has healed which is all positive news for us.