This handsome brave boy is 6 months old now and has successfully recovered from his big 9 hour surgery, which was first to stop the blood flow feeding the tumour followed by the surgery to remove the full tumour successfully. Unfortunately after the shunt was put in and a round of chemo was given to Baby Declan it showed the tumour had grown quite quickly so the urgency to remove the tumour came around quicker than we expected.
The Doctors and staff at Starship were amazing and took very good care of Declan and we are beyond blessed. Declan has grown and put on heaps of weight and doing what every other 6 month old baby should be doing despite what he has been through he still has the biggest smile on his face that he shares with everyone.
The very rare tumour Declan has was an Atypical choroid plexus papilloma we are still waiting on more tests to confirm and discuss the next steps.
Declan’s meant to be undergoing a more agressive round of chemotherapy in the next few weeks due to a part of his brain steam showing an area of concern.
We just want to take this time to Thank each and every one who has supported in any way throughout this tough journey we are facing it really does mean the world to us so please keep Baby Declan in your thoughts and I will update this page as we navigate our way through this journey right by his side X
