Declan’s scar from big surgery
7 January 2026
Posted by: Declans Mum Emma McComb
Help baby Declan's long journey ahead
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Declan’s Journey Update
7 January 2026Posted by: Declans Mum Emma McCombThis handsome brave boy is 6 months old now and has successfully recovered from his big 9 hour surgery, which was first to stop the blood flow feeding the tumour followed by the surgery to remove the full tumour successfully. Unfortunately after the shunt was put in and a round of chemo was given to Baby Declan it showed the tumour had grown quite quickly so the urgency to remove the tumour came around quicker than we expected.
The Doctors and staff at Starship were amazing and took very good care of Declan and we are beyond blessed. Declan has grown and put on heaps of weight and doing what every other 6 month old baby should be doing despite what he has been through he still has the biggest smile on his face that he shares with everyone.
The very rare tumour Declan has was an Atypical choroid plexus papilloma we are still waiting on more tests to confirm and discuss the next steps.
Declan’s meant to be undergoing a more agressive round of chemotherapy in the next few weeks due to a part of his brain steam showing an area of concern.
We just want to take this time to Thank each and every one who has supported in any way throughout this tough journey we are facing it really does mean the world to us so please keep Baby Declan in your thoughts and I will update this page as we navigate our way through this journey right by his side X
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Keep Declan in your thoughts
14 December 2025Posted by: Declans Mum Emma McComb❤️❤️❤️❤️
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You're my thoughts and I wish Declan the best care and outcome this week
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Declan’s Surgery
14 December 2025Posted by: Declans Mum Emma McCombDeclan had his MRI post Chemo down in Wellington on the 9th December and unfortunately the chemo has not shrunk the tumour at all in fact it has grown we are heart broken 💔 Declan and his Dad have flown back to starship today and I will be driving up tomorrow (Sunday) as they are proceeding with the surgery Monday the 15th where they are hoping to remove the tumour safely but do a procedure before hand to stop the blood flow feeding the tumour. There are so many risks that we have been informed about re the surgery and we are really hoping for a positive outcome so please keep Baby Declan in your thoughts and Thank you to each and every one of you who have donated to help through this unfair time 🥹
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Declan's update
8 November 2025UPDATE!
Declan had 1 of his first surgeries and that was putting a shunt in so they can drain the excess fluid from his brain to his abdomen as removing the tumor isnt the best thing to do atm as he is still so tiny and would be life threating!
While the oncologist, surgical nurse and specialist came together they said the are concerned about a few bits the lit up in Declan's MRI, they suspect cancer.
So on 12th November, they will be travelling back to starship hospital for Declan's first round of chemotherapy.
Pretty sad and heart breaking news but we have to be positive and be the best support team for Jay and Emma and there kids.
Much love
Mon
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