Help Courtney get her Formal H-EDS diagnosis

I'm Courtney I suspect I have Hypermobile Ehlers Danlos Syndrome, which is a connective tissue disorder caused by faulty collagen. Collagen is the glue that holds your body together without good collagen you body start to have a fun slip and slide with joints and other organs that can be affected. The thing is with H-EDS a lot of people don't know about the disease and trying to get diagnosed is very hard.

For me it affects my joints, bladder, Digestive system, the list goes on. I have nerve damage in my spine from L1 - L2. Therefore standing for long periods of time can be extremely painful, I am on painkillers for this and it does affect the majority of my life, I have to work around whether i'm too tired or in too much pain everyday. It's exhausting. I used to be a professional figure skater doing competitions now my life revolves around using a cane or possibly in the coming future a wheelchair.

I have tried to go through the public system in New Zealand but have been turned away several times.

I'm trying to save up so I can see a rheumatologist privately, the only issue is I can't work because of my health so trying to fund this doesn't seem like an option at all.

Please help me achieve my goal!