Help Archie Thrive
Asking for help to support Archie and our family.
Wellington
UPDATE:
Archie is currently fighting for his life in Wellington ICU after rapidly developing severe pneumonia in his left lung. This is about as bad as it can be. He’s had such a hard run of illness recently despite our efforts to support him. He will be flown to Starship today (June 25th) for more intensive support.
We’ve made the decision to withdraw him from NAPA, which this page was originally set up for. We hope you understand. Funds will be used for airfares, travel, accommodation, time off work.
He is loved by so many people.
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Our son Archie is an extraordinary little boy. Born six weeks early with a very rare genetic condition, every day is a challenge. Archie can’t feed like most babies, he struggles with growth, reflux, Illness and motor movement. His tiny body requires round-the-clock care. Despite this rough start he is the sweetest natured little boy and does his best every day.
His genetic condition is so rare, he is likely the only one with it worldwide. He has an unbalanced translocation, resulting in a deletion on 12p and a duplication on 6q. He will have movement, feeding and other challenges for most of his life.
Even a small donation makes a real difference. If you can’t contribute, sharing Archie’s story with others helps more than you know.
Thank you for helping us give Archie the best possible start in life.
Please see our previous Givealittle page here: https://givealittle.co.nz/cause/help-baby-archie-and-his-whanau-through-this
Use of funds
Funds will be used to support Archie’s therapies, for specialised feeding supplies and equipment, travel and accommodation for hospital appointments, and time off work so we can take care of Archie.
Latest update
Critically Ill in PICU 26 June 2026
Hi everyone,
A lot has happened the last 48 hours - it's been intense. Archie was stabilised by the wonderful medical professionals in Wellingtons ICU - They are all heroes and total professionals. He was retrieved by Starship that night and moved into PICU. He handled the flight well and his oxy concentration needs had dropped from 100% peak crisis to 50% for the flight. He's about 45% now.
Bacteria has been cultured out of any early blood sample but it appears the antibiotics he was put on do treat this strain so thats positive. It was the common cold that kicked this off.
His intubation was difficult and lengthy. During that time his blood oxygen saturation dropped to as low as 20%. While in PICU they've started cooling therapy to help support him. The Dr's think at this time he is at low-risk of further complications but we won't know until he wakes. The are going to attempt to lift his sedation on Sunday, once this cooling therapy phase has been completed and remove his breathing tube. They are managing to get some mucus out of his lungs, which has also been sent away for testing. He has a long, long road ahead of him.
It's hard to believe that less than a week ago he was on day 5 of his illness recovery - he was the best we'd seen him in a long time. 48 hours after that he's in critical condition. Mum is with him now, with Dad and Sis flying up Sunday.
Thank you so much for your support, reaching out and aroha, it means so much.
Dan, Coral, Lily, Archie
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