Asking for help to support Archie’s uncertain journey.
Wellington
Our son Archie is an extraordinary little boy. Born six weeks early with a very rare genetic condition, every day is a challenge. Archie can’t feed like most babies, he struggles with growth, reflux, Illness and motor movement. His tiny body requires round-the-clock care. Despite this rough start he is the sweetest natured little boy and does his best every day.
His genetic condition is so rare, he is likely the only one with it worldwide. He has an unbalanced translocation, resulting in a deletion on 12p and a duplication on 6q. He will have movement, feeding and other challenges for most of his life. The lack of case studies and literature means mum, dad and his big sister face the most uncertain of futures.
We want Archie to thrive, to reach milestones that most children take for granted, and to experience the joy, laughter, and adventure of childhood. To do that, we need help.
Your support will directly help with:
• Specialised feeding supplies and equipment
• Travel and accommodation for hospital appointments
• Therapies to support his development
• Day-to-day care that allows us to keep him safe, healthy, happy and developing.
Even a small donation makes a real difference. If you can’t contribute, sharing Archie’s story with others helps more than you know.
Thank you for helping us give Archie the best possible start in life.
Please see our previous Givealittle page here: https://givealittle.co.nz/cause/help-baby-archie-and-his-whanau-through-this
Funds will be used to support Archie’s therapies, for specialised feeding supplies and equipment, travel and accommodation for hospital appointments, and time off work so we can take care of Archie.
1.5 weeks Post op 26 October 2025
Had a good day today with Archie. He was much happier and active today and was shaking much less discomfort from his tummy. He went through so much, and his post op care has been intense and challenging but we hope he’s turned a corner.
He’s responded well to the removal of the NG - much less fetching, gagging and of course vomiting (no vomiting in fact) so we hope once he recovers of the next six weeks, life will be much better for him. It’s been a real pleasure to see him without it takes to his face.
Thanks everyone for all to our support. Every donation has touched us deeply, and we appreciate every page share to get Archie out there.
Thank you so much.
Thank you so much Felicity.
Thank you for your suppprt.
Thank you so much Danelle.
Thank you for your generosity Gina.
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