Help Archie Thrive

Our son Archie is an extraordinary little boy. Born six weeks early with a very rare genetic condition, every day is a challenge. Archie can’t feed like most babies, he struggles with growth, reflux, Illness and motor movement. His tiny body requires round-the-clock care. Despite this rough start he is the sweetest natured little boy and does his best every day.

His genetic condition is so rare, he is likely the only one with it worldwide. He has an unbalanced translocation, resulting in a deletion on 12p and a duplication on 6q. He will have movement, feeding and other challenges for most of his life.

An opportunity has presented to attend the pop-up NAPA clinic here in Wellington in July.

This covers:

- Intensive daily therapy blocks

- Customised program built around Archie’s goals

- DMI sessions for motor control and balance

- Physical therapy for strength, coordination, and mobility

- Occupational therapy for fine‑motor and sensory development

- Speech/feeding therapy

- Use of specialised equipment brought to the pop‑up

- Parent coaching to support carryover at home

The clinic is going to cost our family over $7,500.00 NZD.

Even a small donation makes a real difference. If you can’t contribute, sharing Archie’s story with others helps more than you know.

Thank you for helping us give Archie the best possible start in life.

Please see our previous Givealittle page here: https://givealittle.co.nz/cause/help-baby-archie-and-his-whanau-through-this