Asking for help to support Archie and our family.
Wellington
UPDATE:
Archie is currently fighting for his life in Wellington ICU after rapidly developing severe pneumonia in his left lung. This is about as bad as it can be. He’s had such a hard run of illness recently despite our efforts to support him. He will be flown to Starship today (June 25th) for more intensive support.
We’ve made the decision to withdraw him from NAPA, which this page was originally set up for. We hope you understand. Funds will be used for airfares, travel, accommodation, time off work.
He is loved by so many people.
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Our son Archie is an extraordinary little boy. Born six weeks early with a very rare genetic condition, every day is a challenge. Archie can’t feed like most babies, he struggles with growth, reflux, Illness and motor movement. His tiny body requires round-the-clock care. Despite this rough start he is the sweetest natured little boy and does his best every day.
His genetic condition is so rare, he is likely the only one with it worldwide. He has an unbalanced translocation, resulting in a deletion on 12p and a duplication on 6q. He will have movement, feeding and other challenges for most of his life.
Even a small donation makes a real difference. If you can’t contribute, sharing Archie’s story with others helps more than you know.
Thank you for helping us give Archie the best possible start in life.
Please see our previous Givealittle page here: https://givealittle.co.nz/cause/help-baby-archie-and-his-whanau-through-this
Funds will be used to support Archie’s therapies, for specialised feeding supplies and equipment, travel and accommodation for hospital appointments, and time off work so we can take care of Archie.
Lifting sedation as begin. 29 June 2026
Hey everyone,
Archie finished his HIE cooling protocol at midnight last night and sedation weaning has begun. The HIE protocol is to protect Archie’s brain. His intubation on Wednesday night was long and difficult and he had some hypoxic moments with low oxygen. The Drs think his risk was low, and he has shown some promising signs but we won’t know if our sweet little boy was infected or not until after he wakes properly.
In that space - he is starting to push through the sedation and wiggle his body, move his head, lift his arms and he’s opening his eyes. It appears he’s aware of the tube and wants it out but they send him back to sleep. These are good signs but there’s still a lot of uncertainty.
They’ve identified and treated bacteria which caused his pneumonia. He’s still got a long way to go and we’ve been told he’s going to be here most likely for weeks, before he goes back to Wellington to continue his recovery.
Lily flew up with Dad yesterday and will fly back with mum tomorrow for a much needed rest. Mum then flys back on Friday to relieve Dad and then the weekly shuttles begin.
So much more to say but not enough space to say it - but thank you so, so much for your continued support and love during this terrible time. We love Archie desperately. He’s such a sweet little boy and it’s so unfair he’s had to go through this, after already going through so much. He’s a fighter and loved by many, many people.
Dan, Coral, Lily and Archie.
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