Jacob needs help to get tests, in order to get a diagnosis for a rare disease called Dercum Disease.
Wellington
Since the age of eighteen, Jacob has struggled with many lipomas in his body. After ten years of struggling with doctors in New Zealand, he has not gotten anywhere. Since moving to Melbourne two months ago, these lipomas have began interfering with Jacob's body, causing issues with sleeping, eating, energy and mood, and as of late, chronic pain. As a result of this pain, Jacob is unable to be active and find work.
Research suggests that Jacob has Dercum Disease, a rare disease (especially for men), characterised by the growth of many being lipomas deep under the skin. If left untreated, these lipomas can prevent nutrient absorption from food, put pressure against other organs and nerves, and have a negative impact on a person's sleep and mental health.
The only way to help Jacob is to meet with required specialists, such as dermatologists, to obtain a diagnosis and receive the care he needs. Without these lipomas, Jacob can return to his original, lively self!
Jacob is my amazing husband, who I've been with for nearly eight years, married for three.
The money will be used on appointments and tests with specialists, to rule out any other illness, and eventually confirm Dercum Disease.
Thanks everyone! 1 July 2025
Thanks to everyone who have donated! The generosity from friends and family mean a lot to us.
Unfortunately, our journey getting Jacob's diagnosis will be a lot longer than expected: we have a plastic surgeon and dermatologist both scheduled for November. Until then, our focus is on pain management, and for Jacob to find additional work. At the very least, we are now in a situation where Jacob and I can stay in Melbourne and support each other. It is just one day at a time from here ...
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