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Help KJs Battle with DIPG 💙🙏

  • KJ THE STRONG

      30 July 2023
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    Hi everyone, on behalf of KJs parents and family we'd like to thank you all once again for your love & support throughout KJs journey 🤍 Tupou Kapetaua Tatafu Pohiva Jr passed away peacefully at his home 18/07/2023 and layed in his final resting place 22/07/2023. He fought such an amazing fight! Truly a child warrior in our eyes who fought his battle against DIGP with God at the front. We now have a guardian Angel watching over us always. We love you KJ.

    We hope this has raised some awareness around DIPG and what to look out for. Thank you again for your Support. Love always, THE STRONGS.

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  • Update on KJ the Champ!

      8 January 2023
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    Kia Ora whanau, friends and new friends,

    We hope this finds you and your whanau well ❤ Christmas and New Year was a ball with our KJ! We hope yours was filled with love, light and laughter ❤

    A quick update on Master KJ ❤

    He has completed his rounds of Radiation Therapy. We're looking at alternative avenues to help further the time we may have with him. There's been a rapid change in how DIPG has affected KJ. He can stand while being supported but unfortunately can not walk. He loves to be wheeled around in his awesome wheelchair and loves to direct his chauffeurs lol. No more feeding tube but a change in his diet to softer foods that he can swallow.. he still has his favorite Chicken Nuggets (just diced up really small) 😊

    With your kind donations, KJ has been able to do some very cool things with his parents and siblings. Core memories that you have helped make possible! A very heartfelt thank you from KJ and his whanau to you and yours! As parents, this would be one of the most challenging experiencesl and Jonathan & Melissa are the faces of bravery and grace. It's with the love, prayers and support from whanau, friends and new friends that help keep them going.

    We're wishing you all the very best for the start of this new year and your future endeavors for 2023! And ask that you continue to keep KJ in your thoughts and prayers please. Thank you again! We appreciate you more than you know x

    Ofa atu from KJ & whanau.

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