It is important to us that KJ, his parents and his adoring brothers and sisters make the most of every moment remaining of his journey.
Auckland
This beautiful smile belongs to a young 6yr old boy named Tupou Kapetaua Tatafu Jr aka KJ. He's a very happy, vibrant and energetic child with a cheeky smile that will melt your heart!
Just over a week ago our boy was taken to Starship Hospital in Auckland after his parents noticed some change in his speech and behavior. After a few anxiety ridden days of waiting for a diagnosis and praying for the best, we were devastated to hear KJ has been diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma).
DIPG (Diffuse Intrinsic Pontine Glioma) is a very rare, aggressive, cancerous brain tumor and is unfortunately inoperable. DIPG is so rare that less than 0.00025% of children are diagnosed with it in New Zealand per year. DIPG has a 0% survival rate. The median overall survival of children diagnosed with DIPG is approximately 9 months. The 1- and 2-year survival rates are approximately 30% and less than 10%, respectively. These statistics make DIPG one of the most devastating pediatric cancers.
KJ's parents have been told he does not have long. With radiation therapy and an army of prayer warriors, we hope to slow down the tumor's rapid growth and buy KJ some precious time.
KJ's parents are Jonathan Andrew & Melissa Tatafu (my baby brother and his wife)
We hope with your support we can alleviate the financial pressure of travel, treatment related and living costs to afford their family the ability to focus on what little time is left. To fulfill his last wishes and make memories with his family.
KJ THE STRONG 30 July 2023
Hi everyone, on behalf of KJs parents and family we'd like to thank you all once again for your love & support throughout KJs journey 🤍 Tupou Kapetaua Tatafu Pohiva Jr passed away peacefully at his home 18/07/2023 and layed in his final resting place 22/07/2023. He fought such an amazing fight! Truly a child warrior in our eyes who fought his battle against DIGP with God at the front. We now have a guardian Angel watching over us always. We love you KJ.
We hope this has raised some awareness around DIPG and what to look out for. Thank you again for your Support. Love always, THE STRONGS.
Hi Natasha, we hope you've had a great start to the year x thank you for you support! ❤
Hi Elena, thank you for your Support ❤️ we hope you had a lovely Christmas and New Year x
Thank you for your Support ❤ hope you had a lovely Christmas and New Year
Hi Stacey! Thank you for supporting KJ x we hope you had a lovely Christmas and New Year ❤
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