Supporting Leo, 13, on his journey with rare glaucoma and helping him reach a vital summit this June.
Auckland
✨ Help Leo get to the Global Glaucoma Summit in San Francisco ✨
Leo (13) lives with rare congenital glaucoma and Axenfeld-Rieger syndrome. He has undergone more than 50 surgeries, including open-heart surgery, and last year lost vision in his left eye.
Despite a lifetime of medical challenges, Leo continues to face life with humour, resilience and positivity. Over the past year, he has turned his experience into advocacy — speaking openly about childhood glaucoma, sharing his story publicly, performing, podcasting and helping other families feel less alone 🤍
This June, Leo has the opportunity to attend the Global Glaucoma Summit in San Francisco, connecting with world-leading specialists, researchers and families facing the same challenges while learning more about protecting his remaining vision.
We also hope to give Leo something joyful to look forward to by creating special memories together at Disneyland ✈️🏰
Leo also requires ongoing Auckland to Wellington medical travel for specialist appointments, surgeries and monitoring.
A huge thank you to Air New Zealand Dream Seats, the Glaucoma Research Foundation for donating our San Francisco accommodation, and our amazing supporters helping make this possible.
Funds raised will help cover:
✈️ Remaining flights
🏨 Accommodation
🍽️ Food and transport
🩺 Insurance and medical costs
🛫 Ongoing Auckland to Wellington medical travel
Thank you for believing in Leo
Leos story: https://glaucoma.org.nz/leos-story/
I've been a close family friend for over a decade and watched Leo battle to save his sight
Flights for Leo and his family (Jeremy, his mum, and his sister Dot), accommodation and transport, specialist medical appointments and conference access, travel to and from Wellington, and a Disney adventure.
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