Supporting Leo's lifelong journey with congenital glaucoma by helping provide access to leading care.
Auckland
Leo is 13 and was born with congenital glaucoma and Axenfeld-Rieger syndrome, a rare condition that has shaped his life from the very beginning. So far, he has undergone more than 50 surgeries and procedures in an effort to preserve his vision.
In 2025, despite every effort, Leo permanently lost the vision in his left eye. Today, our focus is on protecting the vision in his remaining eye and giving him every opportunity to thrive.
We are incredibly grateful that Leo’s surgeries have been covered by our health insurance. Leo still continues to see his specialist in Auckland. However, due to the complexity of his condition, Leo now travels to Wellington for specialist glaucoma care when needed. He is also expected to require cataract surgery next year, along with ongoing specialist appointments, travel, specialised glasses and lens updates, vision-related needs and educational support.
Thanks to the generosity of family, friends and the community, Leo was able to attend the Global Glaucoma Patient Summit in San Francisco, connecting with world-leading congenital glaucoma specialists who are already in contact with our specialists here.
Your support helps us continue providing Leo with the very best care, support and opportunities throughout his lifelong journey.
Thank you for reading Leo’s story. Whether you donate, share or simply keep him in your thoughts, we are truly grateful.
With heartfelt thanks
Leos story: https://glaucoma.org.nz/leos-story/
I've been a close family friend for over a decade and watched Leo battle to save his sight
Flights for Leo and his family (Jeremy, his mum, and his sister Dot), accommodation and transport, specialist medical appointments and conference access, travel to and from Wellington, and a Disney adventure.
An Update From Leo 23 July 2026
Because of your incredible kindness, we made it!
Thank you to everyone who donated. Your generosity made it possible for Leo to attend the Global Glaucoma Patient Summit in San Francisco, where we met world-leading glaucoma specialists and connected with other families living with congenital glaucoma.
One of the highlights was meeting Dr James Brandt, who generously took the time to discuss Leo’s complex case. We came home reassured that Leo’s treatment is on the right path. Dr Brandt has also connected with Leo’s New Zealand specialists, and they will continue collaborating to ensure Leo gets the best possible treatment.
Since returning home, Leo has had the opportunity to share his journey on the Dom Harvey Podcast and in an upcoming feature in the New Zealand Herald. By sharing his story, he hopes to raise awareness of congenital glaucoma, support other families facing similar challenges.
After the summit, we were also able to create some precious family memories together at Disney.Thank you for making those moments possible.
Leo’s journey continues. He still sees his glaucoma specialist in Auckland for regular appointments and now travels to Wellington for procedures and surgery when needed. He will require cataract surgery in the future, but for now we’re grateful to be able to give him a well-earned break from surgery.
From the bottom of our hearts, thank you! Your kindness has given our family hope, reassurance and opportunities we will never forget.
Thanks so much ❤️❤️
Thanks so much James ❤️
Thank-you so much
Thanks 🙏
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