Help Malachi Fight his pain and do his Bucket List

Malachi's genetic tests come back. He does have 2 genes that have mutations in them. It is the ssme gene as Muscular dysyrophy but IS NOT Muscular dystrophy, a different mutation. He is the 3rd of 3 people in the world with this condition. There is little information about it but it is in fact a degenerative muscle condition. As there is little information about his conditions he has volunteered himself to genetic testers to have all his symptoms, medical information recorded accurately to help people in the future. Unfortubately there is no cure. He has taken this with a positive fighting spirit and is battling on despite his tired painful body.

Malachi also had a positive MRSA results which leaves him vulnerable to infections. It is resistant already to some antibiotics so that's pretty scary.

Malachi's bucket list has been almost filled with offers and he will tick through these as he is able. Any help with his Givealittle to receive medical equipment, assistance, help with medical bills and ongoing costs will be truly appreciated. Please share and help this little guy fight.