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HELP MEILAS BATTLE FOR A CURE!!!

  • Meilas been accepted on a clinical trial in North Carolina America

      1 June 2024
    Posted by: Kristin Davis
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    Just an update- Meila has been accepted on a phase 1 CAR-T cell therapy trial in America. We look to go over in July, Meila will have her Cell procurement (they take a heap of blood) then they make up the CAR-T drug. We only go to America for 2 or 3 days for this then come home. It takes approx 6 weeks to make the drug and then we head back to America for approx 5 weeks. There is serious risks with this therpy, but they have procedures in place that if Meila becomes to sick that they can cancel the CAR-T and she should be fine.

    Unfortunately NZ don't cover the cost of the trial and it's completely self funded. Est is $90,000 American ($150,000 nz) plus travel and accommodation. So we will use all the money raised to put towards this and keep raising money and selling off assets. While this is classed as experimental treatment- it has been really successful in other trials and different cancers. So we are excited at what this treatment will offer Meila

    We will keep you updated ♥️

    P.s this is a photo of Meila playing netball with her team a few weeks ago ... she's doing so well - we feel so lucky she's been given another chance 🙏

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  • Well enough to travel

      2 May 2024
    Posted by: Kristin Davis
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    Hi team- we wanted to give a brief update.

    Meila is doing really well - her lung surgery to fix her collapsed lung was successful. I am still fighting and trying to get meila treated with EnGeneIC, we take 2 steps forward and 1 step back. But we are currently looking for a Dr to prescribe as we have found a facility to treat her with it. Her oncologist in CHCH is being super supportive and we believe if he could prescribe it he would. But Te whata ora are blocked that.

    We managed to take a break to the Gold Coast for 4 days and it was so great to see Meila enjoying things like she used to before Cancer. We have a scan in 2 weeks time. We are nervous about this but based on Meilas determination and fight we feel positive that we might get some positive results from her therapy she is receiving at the moment. We will definitely keep everyone updated.

    Thank you again for your kindness and generosity! We are so blessed xxxx love the Davis family

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    • 05/05/2024 by bev

      It warms my heart to see this lovely family photo. Keep up the hard work Meila. XX

  • Update

      12 March 2024
    Posted by: Kristin Davis
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    Unfortunately we have still not been given the go ahead from Sydney children's hospital... we have been to Sydney twice with expected start date to only be left waiting. EnGeneIC have the personalized drug waiting for Meila. It's so frustrating and we have wasted so much time waiting for them ! While we have been waiting- Meilas left lung collapsed and filled with 1.7 L of fluid and disease progression. She just had emergency surgery... She is no longer able to travel ... tonight 6pm Newshub TV3 our story is being shared if you want to watch. We will not give up fighting... we need to break through NZ's redtape to give our loved ones a chance 🙏

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  • We are on our way to Sydney

      19 February 2024
    Posted by: Kristin Davis

    We are on the plane - boarded for Sydney.. thank you to each and everyone of you ❤️

    The kindness we have received is incredible and we are so so thankful for the love and support. I will keep you updated on how Sydney goes- but we are looking forward to some good news ! ❤️

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    • 19/02/2024 by Lea

      Best of luck in Sydney. You are in our thoughts❤️

  • Thank you ❤️

      29 January 2024
    Posted by: Kristin Davis
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    We are completely blown away at the kindness and generosity of what has been sent our way, each and every one of you are part of our journey and we are truly humbled by the love we have received - thank you from the bottom of our hearts 💕

    Below is a photo of our Meila enjoying time in Queenstown (home) with some of her besties this weekend ... watching her not be so sick and just enjoying a fun weekend with friends just fills our heart with happiness and hope ... it's the little things that we used to take for granted that now are the big things. Hug your loved ones extra tight and enjoy 'time' with them - you never know what's around the corner 💗

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    • 30/01/2024 by Maryann &Jimmy

      Love this pick ,a happy photo of friends just hanging out ❤️