Help Millie get life-saving surgery in Germany
Otago
Millie has hypermobile Ehlers Danlos Syndrome - a genetic connective tissue disease that affects every part of her body. There is currently no cure for Ehlers Danlos and we lack proper medical treatment here in New Zealand.
As a result Millie has life-threatening vascular compression syndromes. She hasn’t slept through the night in over 3 years and weighs less than she did when she was 10. Even a sip of water causes her severe pain and nausea. Almost everything she used to enjoy doing is now impossible for her.
I can’t fathom how on earth Millie is still alive, let alone be smiling and positive. I guess illness and hardship either make or break us. In the midst of suffering and loss, she still manages to find joy and gratitude. People like her are rare and needed in our world.
I desperately want to keep my daughter alive and enable her to thrive.
For the past 5 years, I have been trying to find help. I believe our best option is to get Millie to Professor Wilhelm Sandmann in Düsseldorf, Germany. He is one of only a handful of surgeons in the world who is able to perform surgery to treat these compression syndromes.
This could be her miracle.
Previous page: https://givealittle.co.nz/cause/help-millie-fight-ehlers-danlos-syndrome-and-its
Surgery = $80,000
Flights and accommodation = $10,000 approx.
Additionally, she requires full-time care and will continue to need this for quite sometime as she recovers. I have been unable to work and will remain so for at least another year.
Gratitude 15 November 2021
Although the trip to Germany didn’t go as hoped, we remain philosophical about the whole experience. At least we tried and we now know more about the limitations of worldwide mainstream medicine for the treatment and understanding of EDS.
Thank you to those who provided support/acts of kindness in Germany; Eike Breitbarth, Donna Farhi, Carolanne Weidle, Lisa Akesson, Adam Rankin, Charlotte Stubbs, Rosann Connolly-George, Brad Black, Sinead at Yogandha.
Thank you to the wonderful support people back home; Mike & Claudine, Krissy & Graeme, Kim & Riv, Zuzana, Rosann (again)
Millie is focused on holistic healing; meditation, yoga, Qi gong, Ayurveda, sound therapy, holistic nutrition. Thank you to the generous amazing practitioners who continue to help us out of the kindness of their hearts; Donna, Charlotte, Brad.
We are so grateful to every single one of you who have helped us on this journey.
Thank you so much Tanea. You are so kind xx
Millie is truly courageous- thank you so much 😊
Thank you 🙏
Thank you so much Mark- we are truly grateful for your kindness and generosity 🙏🥰
Thank you so much 😊
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