HELP NICOLE GET THE SURGERY SHE NEEDS

Our daughter Nicole needs specialized surgery that cannot be done in New Zealand.

In October 2023 Nicole was diagnosed with Hypermobile Ehlers Danlos syndrome (hEDS) with abdominal vascular compressions. A genetic connective tissue disorder that affects every system in her body. She is severely affected and frighteningly this is a life-threatening condition. AVC are very rare where blood vessels, organs and nerves are compressed by other structures in the body. This limits proper flow of blood around the body and to major organs as well as food from moving through the intestines.

This leads to debilitating symptoms of constant and severe pain with nausea. Even liquid food intake is painful and she is currently fighting the suggestion of placement of a feeding tube. The healthcare system refuses to treat here. We have to look at Germany for life-saving treatment where she will undergo major abdominal surgery. Other NZers have spoken publicly about their own successful surgeries in Germany that changed their prognoses and life. This surgery is also recommended by NZ specialists.

We need your help to get her the surgery she desperately needs.

Thank you for your generous support as we navigate this challenging journey.