Help Rhiannon Survive with ME/CFS

I'm Rhi. I have ME/CFS, post-vax Long COVID, MCAS, severe dysautonomia, hEDS, fibromyalgia, and worsening scoliosis with associated spinal issues.

I was diagnosed with ME/CFS, age 11. Despite living a relatively expansive and normal life with mild ME/CFS, my health declined following the COVID vaccine into a very severe bedridden state of ME/CFS. I could no longer move or eat and was trapped in a state of suspended dying. Three years have passed, and I am still bedridden and suffering severely every day.

I need to regain some quality of life. I don’t want this nightmare to be my last experience in life. I need hope. I need help.

When my sole carer, became unwell, I ended up in hospital for nearly a year (with some time in a rest home). At the mercy of the ill-equipped health system, my condition worsened. It was a daily fight and caused immense trauma.

Now I am in a care home. However, I cannot afford the minimum costs for my survival.

My costs far outweigh government funding, and with no solution in sight from MSD, I need your support. My board is $400 per week, leaving me only $86.25 to cover medications, doctor appointments, food supplements, and other essential therapies.

I just want a chance to get better. Please help me keep going.

With the little energy I have, I help people access help in a system with nothing much to give us. It takes all I have, but no-one should face this alone. Helping me, you will help support countless others on their complex illness journeys.