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Help Robyn battle her cancer with this new miracle drug!

  • UPDATE - Post infusion 2

      21 June 2023
    Posted by: Robyn Macdonald
    Main image

    Going into round 2 with a little less energy than round 1, it has been more problematic with other health issues and a short visit to the hospital.

    The outcome from recent scans, all is stable and going in the right direction.

    I can report that I am 100% walking better, have less leg numbness and significantly less pain.

    The tumour on my jaw is small now and does not feel swollen.

    All in all, significant progress has been made that I could not of achieve without your help. I am so grateful to everyone who messages me, wishes me well, and has shared, and donated.

    It's all the little things that make the difference for me. It's really working.

    I am now working towards infusion #3, which was to be this Friday but have not managed to reach the funding mark so I have decided to delay for now, to give myself a little more time.

    I am always grateful for any donations and shares of my story.

    Infusion #3 will hopefully give it that extra kick in the butt and keep everything shrinking.

    My goal is to be "No Evidence of Disease', others have done it, and so can I.

    The image I have used today is from a recent article in Women's Day. Check it out :-)

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  • Getting Ready for Treatment #2

      31 May 2023
    Posted by: Robyn Macdonald

    UPDATE:

    Treatment #2 Friday 2 JUNE... 💃💃💃

    Yesterday was a bit of a panic, as I'm 3k short the mark for treatment #2.

    I was so worried that they would give up my chair.

    It turns out they will invoice me the balance owed due seven days.

    So please keep sharing and donate what you can.

    It seems to me it's all about timing, and the challenge is to stay calm and trust that it will all work out.

    Somedays feel like I'm a leaf blowing in the wind, and others are more fully intentional about the outcomes, and magic happens.

    Weeks 3 from the first treatment:

    I have less pain and numbness in my jaw tumour. I'm not sure there is any change in my legs. I must remind myself that it's very early days.

    For the folks that know all the other stuff I incorporate into my treatment plan, and for other cancer warriors, I have chosen not to do any other integrative treatments whilst I'm getting this targeted treatment. I want a baseline, I do not want to interfere with how we know this medication works, plus it has a longer half-life, it keeps working longer, and maybe even my detox techniques will be removing the treatment from my system, something I don't want to happen when it's literally like gold in my body.

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  • NZ's Shameful Health Secret

      16 May 2023
    Posted by: Robyn Macdonald

    When I sat in my oncologist's room 2 months ago, and she told me there are now limited, to no funded drug options left for me that will continue to hold the growth of my Stage 4 Breast Cancer, I was very scared.

    Living well WITH cancer is an option today because of modern medicine. I have lived very well with Stage 4 cancer, for 5 years now. I continue to work and live an almost normal life.

    Riding a bike, working, running a family life, and sharing time with friends. All normal enjoyable things.

    So when you feel so completely normal but are faced with one big challenge.

    Without access to modern medicine, the tumours growing in my spine will make me a paraplegic, and the most effective treatment option is access to a drug that costs 23K+ a month. I had to turn to fundraise.

    As a proud businesswoman of 25+ years, fundraising was not a path I wanted to go down but the alternative was worse.

    In total, I have been living well with Breast Cancer for 12 years, and it's only now I am really seeing the BIG issue New Zealand has when it comes to funded medicine.

    For those who are interested this is a very good video that sums up the issue and highlights why proud people just like me, are vulnerable, alone and left to fundraise for life and disability-saving options, not covered by the New Zealand Health system.

    Donate what you can please. xxx

    As always I am so grateful for your support. Share the link. Share the story, and keep shining lights on issues to bring change.

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  • TREATMENT ONE TODAY - FRIDAY THE 12TH

      12 May 2023
    Posted by: Robyn Macdonald
    Main image

    UPDATE:

    Treatment is happening today.

    The vials have arrived at the hospital and I will get my first treatment today, I have gone from excited to a tad nervous. It's all very real now.

    Showing up - Big Bold Moves- Feeling Brave.

    As always my heart is overflowing with gratitude, the outpour of support makes me feel stronger. Thanks so much to all my beautiful FB friends, family and support.

    You are all doing so well to get me to the next dose!

    The current goal is $15k by the 26th of May, which will secure dose two.

    Celebrating that we are almost halfway there.

    Keep sharing and donating what you can. xxx

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  • My Miracle drug ENHERTU is now stuck in New Zealand customs.

      9 May 2023
    Posted by: Robyn Macdonald
    Main image

    UPDATE - On my Empowerment to the healing journey.

    The miracle drug ENHERTU is now stuck in New Zealand customs and the tumour keeps pushing against my spinal cord.

    I'm not very good at waiting.

    I have posted this image to show the tumours on my spine that are trying to make me a paraplegic. Normal is a lovely long white line.

    I need all the help I can get from my FB friends and family.

    I am so grateful for all sharing of the URGENT challenge and generous donations

    Thank you so much for all your support.

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  • For those who are interested in my healing journey with Cancer. Pre ENHERTU. Treatment UPDATE:

      2 May 2023

    Still excited.... Call me crazy but can't wait until Friday. (Treatment day)

    Many Women are on this journey of living with breast cancer, it's very much a journey when you are at stage 4 it's currently about how long you can get out of each drug.

    In New Zealand, our small nation just simply does not have the funds to cover all the new drugs for all cancer types. I really get that. But around the world, there is so much happening in this area. In the world of mainstream oncology and integrative, which as a Physiotherapist, is what I am really interested in. There is a lot of conversation about Cancer being a metabolic disease and that the mitochondrial function turns into a fermentation process.

    It's complex and I have already been winning HUGE. With 5 years at stage 4 when the prognosis was 3 months - max 2 years, I am an outlier and I attribute that to all that I do.

    I have managed to shrink many of my original tumours BUT new ones have grown.

    Cancer learns and grows, like Wilding Pines. Most days I feel more like Sigourney Weaver in the movie Aliens.

    I share this not for me, but for who else out there might benefit from the huge knowledge I have built up on this topic. I truly believe that the future of cancer will be "living well with a chronic dis-ease" and one day very soon, we will know how to stop it growing. One thing is for sure, you have to really, really want to fight and win. That is why I say it's a journey of EMPOWERMENT.... you have to feel strong, calm, and in control, or anxiety and fear will just feed the alien.

    For those who are interested, I do on a daily basis, Sauna, Exercise, low sugar diet, frequency medicine, meditation, infrared treatment, off-label medication to block metabolic paths and much much more.

    Thank you to all that have supported my fundraising. We have treatment one sorted and only need to fund treatment two.

    Share and give what you can.

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